[Congressional Bills 116th Congress]
[From the U.S. Government Publishing Office]
[H.R. 5790 Introduced in House (IH)]
<DOC>
116th CONGRESS
2d Session
H. R. 5790
To amend the Public Health Service Act to reauthorize and extend the
Fetal Alcohol Spectrum Disorders Prevention and Services program, and
for other purposes.
_______________________________________________________________________
IN THE HOUSE OF REPRESENTATIVES
February 6, 2020
Ms. McCollum (for herself, Mr. Young, Mr. Cole, Mr. Phillips, Ms. Omar,
Ms. Craig, and Ms. Haaland) introduced the following bill; which was
referred to the Committee on Energy and Commerce, and in addition to
the Committee on Education and Labor, for a period to be subsequently
determined by the Speaker, in each case for consideration of such
provisions as fall within the jurisdiction of the committee concerned
_______________________________________________________________________
A BILL
To amend the Public Health Service Act to reauthorize and extend the
Fetal Alcohol Spectrum Disorders Prevention and Services program, and
for other purposes.
Be it enacted by the Senate and House of Representatives of the
United States of America in Congress assembled,
SECTION 1. SHORT TITLE.
This Act may be cited as the ``Advancing FASD Research, Prevention,
and Services Act''.
SEC. 2. PROGRAMS FOR FETAL ALCOHOL SPECTRUM DISORDERS.
(a) In General.--Part O of title III of the Public Health Service
Act (42 U.S.C. 280f et seq.) is amended by striking section 399H and
inserting the following:
``SEC. 399H. PROGRAMS FOR FETAL ALCOHOL SPECTRUM DISORDERS.
``(a) Definition.--In this part, the terms `fetal alcohol spectrum
disorders' and `FASD' mean the range of effects that can occur in an
individual who is prenatally exposed to alcohol. Such effects may
include physical, mental, behavioral, and learning disabilities, with
possible lifelong implications.
``(b) Research on Fetal Alcohol Spectrum Disorders and Related
Conditions.--
``(1) In general.--The Secretary, acting through the
Director of the National Institutes of Health and in
coordination with the Interagency Coordinating Committee on
Fetal Alcohol Spectrum Disorders under section 399H-1, shall--
``(A) establish a research agenda for FASD; and
``(B) award grants, contracts, or cooperative
agreements to public or private nonprofit entities to
pay all or part of carrying out research under such
agenda.
``(2) Types of research.--In carrying out paragraph (1),
the Secretary, acting through the Director of the National
Institute of Alcohol Abuse and Alcoholism (referred to in this
part as the `Director of the Institute'), shall continue to
conduct and expand national and international research in
coordination with other Federal agencies that includes--
``(A) the most promising avenues of research in
FASD diagnosis, intervention, and prevention;
``(B) factors that may mitigate the effects of
fetal alcohol exposure; and
``(C) other research that the Director of the
Institute determines to be appropriate with respect to
conditions that develop as a result of in-utero
substance exposure.
``(c) Surveillance, Public Health Research, and Prevention
Activities.--
``(1) In general.--The Secretary, acting through the
Director of the National Center on Birth Defects and
Developmental Disabilities of the Centers for Disease Control
and Prevention, shall facilitate surveillance, public health
research, and prevention of FASD in accordance with this
subsection.
``(2) Surveillance, public health research, and
prevention.--In carrying out this subsection, the Secretary
shall--
``(A) integrate into clinical practice the
evidence-based standard case definition for diagnosis
of fetal alcohol syndrome and, in collaboration with
the Director of the Institute, the Director of the
Centers for Disease Control and Prevention, the
Interagency Coordinating Committee on Fetal Alcohol
Spectrum Disorders established under section 399H-1,
researchers, and other experts in the field, develop
standard, evidence-based clinical diagnostic
guidelines, and criteria for all other fetal alcohol
spectrum disorders;
``(B) conduct applied public health prevention
research to identify evidence-based strategies for
reducing alcohol-exposed pregnancies in women at high
risk for alcohol-exposed pregnancies;
``(C) disseminate and provide the necessary
training and support to implement evidence-based
strategies developed under subparagraph (B) to--
``(i) hospitals, Federally-qualified health
centers, residential and outpatient substance
use treatment programs, and other appropriate
health care providers;
``(ii) educational settings;
``(iii) social work and child welfare
offices;
``(iv) foster care providers and adoption
agencies;
``(v) State offices and other agencies
providing services to individuals with
disabilities;
``(vi) mental health treatment facilities;
and
``(vii) other entities that the Secretary
determines to be appropriate;
``(D) conduct activities related to risk factor
surveillance, including the biannual monitoring and
reporting of alcohol consumption among pregnant women
and women of childbearing age;
``(E) disseminate and evaluate brief behavioral
intervention strategies and referrals aimed at
preventing alcohol-exposed pregnancies among women of
childbearing age in special settings, including
clinical primary health centers, outpatient clinics,
child welfare agencies, and correctional facilities and
recovery campuses;
``(F) disseminate comprehensive alcohol and
pregnancy and FASD information, resources, and services
to families and caregivers, professionals, and the
public; and
``(G) coordinate with affiliated State and local
systems and organizations on activities with respect to
the prevention of FASD and related conditions for
pregnant mothers.
``(d) Building State FASD Systems.--
``(1) In general.--The Secretary, acting through the
Administrator of the Health Resources and Services
Administration, shall award grants, contracts, or cooperative
agreements to States for the purpose of developing and
implementing a statewide FASD strategic plan, establishing or
expanding statewide programs of surveillance, screening and
diagnosis, prevention, and clinical intervention and support
for individuals with FASD and their families.
``(2) Eligibility.--To be eligible to receive a grant,
contract, or cooperative agreement under paragraph (1), a State
shall prepare and submit to the Secretary an application at
such time, in such manner, and containing such information as
the Secretary may require. The application shall include--
``(A) evidence of the establishment of a State
advisory group composed of State agencies, local
governmental entities, and Indian Tribes and Tribal
organizations; and
``(B) private sector stakeholders whose purpose is
to develop a statewide strategic plan and make
recommendations for the prevention of FASD, screening
and diagnosis, and clinical intervention and support
for individuals with FASD and their families.
``(3) Strategic plan.--The statewide strategic plan
required under paragraph (1) shall include--
``(A) identification of existing State and local
programs and systems that could be used to identify and
assist individuals with FASD, related conditions, and
prevent alcohol consumption during pregnancy;
``(B) identification of barriers to access to FASD
diagnostic services or to programs to assist
individuals with FASD or women at risk for substance
abuse and alcohol-exposed pregnancies; and
``(C) proposals to eliminate barriers to prevention
and treatment programs.
``(4) Restrictions on and use of funds.--Amounts received
under a grant, contract, or cooperative agreement under
paragraph (1) shall be used for one or more of the following
activities:
``(A) Providing educational and supportive services
to families of individuals and families with FASD.
``(B) Establishing a statewide surveillance system.
``(C) Including FASD education in State, medical,
and health care (including mental health care)
university programs.
``(D) Collecting, analyzing, and interpreting data.
``(E) Developing, implementing, and evaluating
population-based and targeted prevention programs for
FASD, including public awareness campaigns.
``(F) Referring individuals with FASD to
appropriate support services.
``(G) Implementing recommendations from relevant
agencies and organizations, including the State
advisory group, on the identification and prevention of
FASD, and intervention programs or services for
individuals with FASD.
``(H) Providing training to health care (including
mental health care) providers on the prevention,
identification, and treatment of FASD.
``(I) Disseminating information about FASD and the
availability of support services to families and
individuals with FASD.
``(J) Other activities, as the Secretary determines
appropriate.
``(5) Other contracts and agreements.--A State may carry
out activities under paragraph (4) through contracts or
cooperative agreements with public and private nonprofit
entities with a demonstrated expertise in FASD prevention and
intervention services.
``(e) Promoting Community Partnerships.--
``(1) In general.--The Secretary, acting through the
Administrator of Health and Resource Services and
Administration, shall award grants, contracts, or cooperative
agreements to eligible entities to enable such entities to
establish, enhance, or improve community partnerships for the
purpose of collaborating on common objectives and integrating
the services available to individuals with FASD such as
surveillance, screening, prevention, treatment, and support
services.
``(2) Eligible entities.--To be eligible to receive a
grant, contract, or cooperative agreement under paragraph (1),
a entity shall--
``(A) be a public or private nonprofit entity,
which may be--
``(i) a health care provider or health
professional;
``(ii) a primary or secondary school;
``(iii) a social work or child welfare
office;
``(iv) an incarceration, detainment
facility, or judicial system for juveniles and
adults;
``(v) an FASD organization, parent-led
group, or other organization that supports and
advocates for individuals with FASD;
``(vi) an Indian Tribe or Tribal
organization;
``(vii) an early childhood intervention
facility;
``(viii) any other entity the Secretary
determines to be appropriate; or
``(ix) a consortium of any of the entities
described in clauses (i) through (viii); and
``(B) prepare and submit to the Secretary an
application at such time, in such manner, and
containing such information as the Secretary may
require, including assurances that the entity
submitting the application does, at the time of
application, or will, within a reasonable amount of
time from the date of application, include substantive
participation of a broad range of entities that work
with or provide services for individuals with FASD.
``(3) Activities.--An eligible entity shall use amounts
received under a grant, contract, or cooperative agreement
under this subsection to carry out one or more of the following
activities:
``(A) Integrating FASD services into existing
programs and services available in the community.
``(B) Conducting a needs assessment to identify
services that are not available in a community.
``(C) Developing and implementing community-based
initiatives to prevent, screen, diagnose, treat, and
provide support services to individuals with FASD and
their families.
``(D) Disseminating information about FASD and the
availability of support services.
``(E) Developing and implementing a community-wide
public awareness and outreach campaign focusing on the
dangers of drinking alcohol while pregnant.
``(F) Providing mentoring or other support to
families of individuals with FASD.
``(G) Other activities, as the Secretary determines
appropriate.
``(f) Development of Best Practices and Models of Care.--
``(1) In general.--The Secretary, in coordination with the
Administrator of Health Resources Services Administration,
shall award grants to States, Indian Tribes and Tribal
organizations, nongovernmental organizations, and institutions
of higher education for the establishment of pilot projects to
identify and implement best practices for--
``(A) providing early childhood intervention or
educating children with FASD, including--
``(i) activities and programs designed
specifically for the identification, treatment,
and education of such children; and
``(ii) curricula development and
credentialing of teachers, administrators, and
social workers who implement such programs and
provide early childhood intervention;
``(B) educating judges, attorneys, probation
officers, social workers, child advocates, law
enforcement officers, prison wardens, alternative
incarceration administrators, and incarceration
officials on how to screen, identify, treat, and
support individuals with FASD within the child welfare,
juvenile, and criminal justice systems, including--
``(i) programs designed specifically for
the identification, treatment, and education of
individuals with FASD; and
``(ii) curricula development and
credentialing within the justice and child
welfare systems for individuals who implement
such programs;
``(C) educating adoption or foster care agency
officials about available and necessary services for
children with FASD, including--
``(i) programs designed specifically for
screening and identification, treatment, and
education of individuals with FASD; and
``(ii) education and training for potential
adoptive or foster parents of a child with
FASD; and
``(D) educating health and mental health, and
substance use, providers about available and necessary
services for children with FASD, including--
``(i) programs designed specifically for
screening and identification, and both health
and mental health treatment, of individuals
with FASD; and
``(ii) curricula development and
credentialing within the health and mental
health and substance abuse systems for
individuals who implement such programs.
``(2) Application.--To be eligible for a grant under
paragraph (1), an entity shall prepare and submit to the
Secretary an application at such time, in such manner, and
containing such information as the Secretary may reasonably
require.
``(g) Transitional Services.--
``(1) In general.--The Secretary, in coordination with the
Administrator of the Health Resources and Services
Administration, shall award demonstration grants, contracts,
and cooperative agreements to States, Indian Tribes and Tribal
organizations, and nongovernmental organizations for the
purpose of establishing integrated systems for providing
transitional services for adults affected by prenatal alcohol
exposure and evaluating the effectiveness of such services.
``(2) Application.--To be eligible for a grant, contract,
or cooperative agreement under paragraph (1), an entity shall
prepare and submit to the Secretary an application at such
time, in such manner, and containing such information as the
Secretary may reasonably require, including specific
credentials relating to education, skills, training, and
continuing educational requirements relating to FASD.
``(3) Allowable uses.--An entity shall use amounts received
under a grant, contract, or cooperative agreement under
paragraph (1) to carry out one or more of the following
activities:
``(A) Provide housing assistance to, or specialized
housing for, adults with FASD.
``(B) Provide vocational training and placement
services for adults with FASD.
``(C) Provide medication monitoring services for
adults with FASD.
``(D) Provide training and support to organizations
providing family services or mental health programs and
other organizations that work with adults with FASD.
``(E) Establish and evaluate housing models
specially designed for adults with FASD.
``(F) Other services or programs, as the Secretary
determines appropriate.
``(h) Authorization of Appropriations.--There are authorized to be
appropriated to carry out this section, such sums as may be necessary
for each of fiscal years 2020 through 2025.''.
(b) Services for Individuals With Fetal Alcohol Spectrum
Disorders.--Subpart 2 of part B of title V of the Public Health Service
Act (42 U.S.C. 290bb-21 et seq.) is amended by inserting after section
519B the following:
``SEC. 519C. SERVICES FOR INDIVIDUALS WITH FETAL ALCOHOL SYNDROME.
``(a) In General.--The Secretary may make awards of grants,
cooperative agreements, or contracts to public and nonprofit private
entities, including Indian tribes and tribal organizations, to provide
services to individuals diagnosed with fetal alcohol syndrome or
alcohol-related birth defects.
``(b) Use of Funds.--An award under subsection (a) may, subject to
subsection (d), be used to--
``(1) screen and test individuals to determine the type and
level of services needed;
``(2) develop a comprehensive plan for providing services
to the individual;
``(3) provide mental health counseling;
``(4) provide substance abuse prevention services and
treatment, if needed;
``(5) coordinate services with other social programs
including social services, justice system, educational
services, health services, mental health and substance abuse
services, financial assistance programs, vocational services
and housing assistance programs;
``(6) provide vocational services;
``(7) provide health counseling;
``(8) provide housing assistance;
``(9) parenting skills training;
``(10) overall case management;
``(11) supportive services for families of individuals with
Fetal Alcohol Syndrome and other prenatal alcohol-related
disorders;
``(12) provide respite care for caretakers of individuals
with Fetal Alcohol Syndrome and other prenatal alcohol-related
disorders;
``(13) recruit and train mentors for individuals with Fetal
Alcohol Syndrome and other prenatal alcohol-related disorders;
``(14) provide educational and supportive services to
families of individuals with Fetal Alcohol Spectrum Disorders;
and
``(15) provide other services and programs, to the extent
authorized by the Secretary after consideration of
recommendations made by the Interagency Coordinating Committee
on Fetal Alcohol Spectrum Disorders.
``(c) Requirements.--To be eligible to receive an award under
subsection (a), an applicant shall--
``(1) demonstrate that the program will be part of a
coordinated, comprehensive system of care for such individuals;
``(2) demonstrate an established communication with other
social programs in the community including social services,
justice system, financial assistance programs, health services,
educational services, mental health and substance abuse
services, vocational services and housing assistance services;
``(3) show a history of working with individuals with fetal
alcohol syndrome or alcohol-related birth defects;
``(4) provide assurance that the services will be provided
in a culturally and linguistically appropriate manner; and
``(5) provide assurance that at the end of the 5-year award
period, other mechanisms will be identified to meet the needs
of the individuals and families served under such award.
``(d) Relationship to Payments Under Other Programs.--An award may
be made under subsection (a) only if the applicant involved agrees that
the award will not be expended to pay the expenses of providing any
service under this section to an individual to the extent that payment
has been made, or can reasonably be expected to be made, with respect
to such expenses--
``(1) under any State compensation program, under an
insurance policy, or under any Federal or State health benefits
program; or
``(2) by an entity that provides health services on a
prepaid basis.
``(e) Duration of Awards.--With respect to an award under
subsection (a), the period during which payments under such award are
made to the recipient may not exceed 5 years.
``(f) Evaluation.--The Secretary shall evaluate each project
carried out under subsection (a) and shall disseminate the findings
with respect to each such evaluation to appropriate public and private
entities.
``(g) Funding.--
``(1) Authorization of appropriations.--For the purpose of
carrying out this section, there are authorized to be
appropriated such sums as may be necessary for each of fiscal
years 2020 through 2025.
``(2) Allocation.--Of the amounts appropriated under
paragraph (1) for a fiscal year, not less than $300,000 shall,
for purposes relating to fetal alcohol syndrome and alcohol-
related birth defects, be made available for collaborative,
coordinated interagency efforts with the National Institute on
Alcohol Abuse and Alcoholism, the Eunice Kennedy Shriver
National Institute of Child Health and Human Development, the
Health Resources and Services Administration, the Agency for
Healthcare Research and Quality, the Centers for Disease
Control and Prevention, the Department of Education, and the
Department of Justice.''.
(c) Prevention, Intervention, and Services in the Education
System.--
(1) General rule.--The Secretary of Education shall be the
lead Federal official with responsibility over education-
related issues with respect to children with fetal alcohol
spectrum disorders.
(2) Specific responsibilities.--The Secretary of Education
shall direct the Office of Special Education and Rehabilitative
Services to--
(A) conduct and disseminate training on a
nationwide fetal alcohol spectrum disorders
surveillance campaign to local educational agencies (as
defined in section 8101 of the Elementary and Secondary
Education Act of 1965 (20 U.S.C. 7801)) and early
childhood education providers in collaboration with the
National Center on Birth Defects and Developmental
Disabilities under section 399H(b) of the Public Health
Service Act (as amended by subsection (a));
(B) collect, collate, and disseminate (through the
internet website of the Department of Education, at
teacher-to-teacher workshops, and through other means)
evidence-based practices that are effective in the
education and support of children with fetal alcohol
syndrome disorders (including any special techniques on
how to assist children with fetal alcohol spectrum
disorders in both special and traditional educational
settings, and including such practices that incorporate
information concerning the identification, behavioral
supports, teaching, and learning associated with fetal
alcohol spectrum disorders) to--
(i) education groups such as the National
Association of School Boards, the National
Education Association, the American Federation
of Teachers, the National Association of
Elementary School Principals, and the National
Association of Secondary School Principals;
(ii) recipients of a grant under the 21st
Century Community Learning Center program
established under part B of title IV of the
Elementary and Secondary Education Act of 1965
(20 U.S.C. 7171 et seq.) and other after school
program personnel; and
(iii) Parent Teacher Associations, Parent
Information and Training Centers, and other
appropriate education organizations;
(C) ensure that, in administering the Individuals
with Disabilities Education Act (20 U.S.C. 1400 et
seq.), parents, educators, and advocates for children
with disabilities are aware that children with fetal
alcohol spectrum disorders have the right to access
general curriculum under the least restrictive
environment;
(D) collaborate with other Federal agencies to
include information or activities relating to fetal
alcohol spectrum disorders in programs related to
maternal health, health education, and sex education;
(E) collaborate with the Secretary of Health and
Human Services to ensure that fetal alcohol spectrum
disorders prevention grants under section 399H of the
Public Health Service Act (as amended by subsection
(a)) include education concerning fetal alcohol
spectrum disorders in the sexual and health education
curricula of schools; and
(F) support efforts by peer advisory networks of
adolescents in schools to discourage the use of alcohol
while pregnant or considering getting pregnant.
(3) Definition.--For purposes of this subsection, the term
``fetal alcohol spectrum disorders'' has the meaning given such
term in section 399H(a) of the Public Health Service Act, as
amended by subsection (a).
(d) Prevention, Intervention, and Services in the Justice System.--
The Attorney General shall direct the Office of Juvenile Justice and
Delinquency Prevention to--
(1) develop screening procedures for juveniles who violate
laws as described in section 5031 of title 18, United States
Code, juveniles with chronic truancy, and other individuals,
and conduct training on a nationwide fetal alcohol spectrum
disorders surveillance campaign for the Department of Justice
in collaboration with the efforts of the National Center on
Birth Defects and Developmental Disabilities under section
399H(b) of the Public Health Service Act (as amended by
subsection (a));
(2) introduce training curricula on how to most effectively
identify and interact with individuals with fetal alcohol
spectrum disorders in both the juvenile and adult justice
systems, and investigate incorporating information about the
identification, prevention, and treatment of the disorders into
justice professionals' credentialing requirements;
(3) promote the tracking of individuals entering the
juvenile justice system with at-risk backgrounds that indicates
them as high probability for having a fetal alcohol spectrum
disorder, especially individuals whose mothers have a record of
heavy or binge drinking during pregnancy as reported by the
appropriate child protection agency;
(4) educate judges, attorneys, probation officers, child
advocates, law enforcement officers, prison wardens,
alternative incarceration administrators, and incarceration
officials on how to treat, respond to, and support individuals
suffering from fetal alcohol spectrum disorders within the
juvenile and adult justice systems, including--
(A) programs designed specifically for the
identification, treatment, and education of such
children;
(B) curricula development and credentialing of
teachers, administrators, and social workers who
implement such programs; and
(C) how fetal alcohol spectrum disorders impact an
individual's interaction with law enforcement and
whether diversionary sentencing options or fetal-
alcohol-spectrum-disorder-informed interventions and
programs for such individuals are appropriate;
(5) conduct a study on the inadequacies of how the current
system processes children with certain developmental delays and
subsequently implement alternative methods of incarceration and
treatment that are more effective for youth offenders
identified to have a fetal alcohol spectrum disorder; and
(6) collaborate with fetal alcohol spectrum disorders
professionals and implement transition programs for juveniles
and adults with fetal alcohol spectrum disorders who are
released from incarceration.
(e) Sunset Provision.--Section 399K of the Public Health Service
Act (42 U.S.C. 280f-3) is amended--
(1) by striking ``National Task Force have been appointed
under section 399H(d)(1)'' and inserting ``Interagency
Coordinating Committee on Fetal Alcohol Spectrum Disorders
under section 399H-1(c)''; and
(2) by adding at the end the following: ``Not later than
the date that is 4 years after all such members have been
appointed, the Secretary shall issue to Congress
recommendations on whether the programs under this part should
be extended.''.
SEC. 3. INTERAGENCY COORDINATING COMMITTEE ON FETAL ALCOHOL SPECTRUM
DISORDERS.
Part O of title III of the Public Health Service Act (42 U.S.C.
280F et seq.), as amended by section 2(a), is further amended by
inserting after section 399H the following:
``SEC. 399H-1. INTERAGENCY COORDINATING COMMITTEE ON FETAL ALCOHOL
SPECTRUM DISORDERS.
``(a) In General.--The Secretary, acting through the Director of
the National Institute of Alcohol Abuse and Alcoholism, shall maintain
the `Interagency Coordinating Committee on Fetal Alcohol Spectrum
Disorders' (referred to in this section as the `Committee') with both
Federal and non-Federal members and a chairperson appointed by the
Director, to coordinate and recommend efforts within the Department of
Health and Human Services and other relevant Federal departments and
agencies concerning FASD.
``(b) Responsibilities.--In carrying out its duties under this
section, the Committee shall--
``(1) monitor FASD research and services and, to the extent
practicable, services and support activities across all
relevant Federal departments and agencies, including
coordination of Federal activities with respect to FASD;
``(2) develop a summary of advances in FASD research
related to prevention, treatment, early screening, diagnosis,
and interventions;
``(3) make recommendations for the FASD research agenda to
the Director of the National Institute of Alcohol Abuse and
Alcoholism, as described in section 399H(b)(1)(A);
``(4) review the 2009 report of the National Task Force on
FAS entitled, `A Call to Action', and other reports on FASD and
make recommendations on a national strategic plan to reduce the
prevalence and the associated impact of FASD and improve the
quality of life for individuals living with FASD, which shall
include--
``(A) proposed Federal budgetary requirements for
FASD research and related services and support
activities for individuals with FASD;
``(B) recommendations to ensure that FASD research,
and services and support activities to the extent
practicable, of the Department of Health and Human
Services and of other Federal departments and agencies
are not unnecessarily duplicative;
``(C) identification of gaps or barriers for
individuals living with, or impacted by, FASD in
accessing diagnostic, early intervention, and support
services;
``(D) identification of prevention strategies,
including education campaigns and options, such as
product warnings and other mechanisms to raise
awareness of the risks associated with prenatal alcohol
consumption;
``(E) identification of best practice approaches to
reduce the incidence of FASD; and
``(F) identification of best practice approaches
and models of care to increase support and treat
individuals with FASD, and their families; and
``(5) submit to Congress and the President--
``(A) an update on the summary of advances
described in paragraph (3), one year after the date of
enactment of the Advancing FASD Research, Prevention,
and Services Act;
``(B) an update to the national strategic plan
described in paragraph (4), including any progress made
in achieving the objectives outlined in such strategic
plan, one year after the date of enactment of the
Advancing FASD Research, Prevention, and Services Act;
and
``(C) a final report that provides a summary of
advances described in paragraph (3) and an update to
the national strategic plan described in paragraph (4),
not later than September 30, 2025.
``(c) Membership.--The Committee shall be composed of
representatives as described in paragraphs (1) and (2).
``(1) Federal membership.--Members of the Committee shall
include representatives of the following Federal agencies:
``(A) The National Institute on Alcohol Abuse and
Alcoholism.
``(B) The Centers for Disease Control and
Prevention.
``(C) The Health Resources and Services
Administration.
``(D) Other agencies with responsibilities for
FASD, substance use prevention and treatment, maternal
health, child health and welfare, and rehabilitative
services, which may include Federal agencies that
interact with individuals with FASD in the educational
and correctional systems.
``(2) Non-federal members.--Additional non-Federal public
and private sector members of the Committee shall be appointed
by the Director of the National Institute on Alcohol Abuse and
Alcoholism, including--
``(A) one individual with FASD or a parent or legal
guardian of an individual with FASD;
``(B) one representative of the National
Organization on Fetal Alcohol Syndrome and one
representative of a leading statewide advocacy and
service organization for individuals with FASD;
``(C) one representative of the FASD Center of
Excellence established under section 399H-2, and one
representative of a State advisory group engaged in
building a State FASD system pursuant to section
399H(d); and
``(D) multiple individuals with expertise on FASD
who will serve as representatives of private sector
organizations that engage on FASD issues on behalf of
pediatricians, obstetricians and gynecologists, mental
health care providers, family court judges, juvenile
judges and justice programming and services, and
special education and social work professionals.
``(d) Authorization of Appropriations.--There are authorized to be
appropriated to carry out this section such sums as may be necessary
for each of fiscal years 2020 through 2025.''.
SEC. 4. FASD CENTER OF EXCELLENCE.
(a) In General.--Part O of title III of the Public Health Service
Act (42 U.S.C. 280f et seq.), as amended by section 3, is further
amended by inserting after section 399H-1 the following:
``SEC. 399H-2. FASD CENTER OF EXCELLENCE.
``(a) In General.--The Secretary, in consultation with the
Assistant Secretary for Mental Health and Substance Use, the
Administrator of the Health Research and Services Administration, and
the Director of the Centers for Disease Control and Prevention, shall
make an award of a grant, cooperative agreement, or contract to a
public or nonprofit entity with demonstrated expertise in FASD
awareness, prevention and intervention services. Such award shall be
for the purpose of establishing an FASD Center of Excellence to build
local, State, and national capacities to prevent the occurrence of
FASD, including disorders and birth defects related to combined abuse
of alcohol and other substances, and to respond to the needs of
individuals and their families that carry out the following:
``(1) Initiating or expanding diagnostic capacity of FASD
by increasing screening, identification, and diagnosis of
individuals with FASD in clinical practices, educational
settings, child welfare, and juvenile and correctional systems.
``(2) Providing an internet-based resource center that
disseminates ongoing technical assistance, resource
development, and peer and cross-State training on FASD.
``(3) Conducting media outreach and media training to raise
public awareness of the risks associated with alcohol
consumption during pregnancy with the purpose of reducing the
prevalence of FASD.
``(4) Acting as a clearinghouse on FASD prevention and
intervention practices and services and maintaining a national
resource directory.
``(5) Developing and disseminating information and
resources for training community leaders, mental health and
substance abuse professionals, families, law enforcement
personnel, judges, health professionals, persons working in
financial assistance programs, social service personnel, child
welfare professionals, and other service providers on the
implications of FASD and the early identification of and
referral for such conditions.
``(6) Building capacity for State and local affiliates
dedicated to FASD awareness and prevention efforts.
``(7) Supporting a speakers bureau and other public
awareness activities, including social media, for enhanced FASD
awareness and prevention efforts.
``(8) Providing technical assistance to communities for
replicating exemplary comprehensive systems of care for
individuals with FASD developed under section 399H(e).
``(9) Providing technical assistance to communities for
replicating best practice pilot projects developed under
section 399H(f).
``(10) Providing technical assistance to States in
developing statewide FASD strategic plans, establishing or
expanding statewide programs of surveillance, screening and
diagnosis, prevention, and clinical intervention and support
for individuals with FASD and their families under section
399H(d).
``(11) Developing a comprehensive FASD database of clinics
across the United States, in accordance with applicable privacy
requirements.
``(12) Carrying out other functions, to the extent
authorized by the Secretary, after consideration of
recommendations of the Interagency Coordinating Committee on
Fetal Alcohol Spectrum Disorders in the national strategic plan
under section 399H-1(b)(4).
``(b) Application.--To be eligible for a grant, contract, or
cooperative agreement under paragraph (1), an entity shall prepare and
submit to the Secretary an application at such time, in such manner,
and containing such information as the Secretary may reasonably
require, including specific credentials relating to FASD resource
development and dissemination, care coordination and the coordination
of clinical services, technical assistance, administration of partner
networks, and other such FASD-specific expertise.
``(c) Subcontracting.--A public or private nonprofit may carry out
the activities under subsection (a) through contracts or cooperative
agreements with other public and private nonprofit entities with
demonstrated expertise in FASD prevention and intervention services.
``(d) Authorization of Appropriations.--There are authorized to be
appropriated to carry out this section such sums as may be necessary
for each of fiscal years 2020 through 2025.''.
(b) Conforming Amendment.--Section 519D of the Public Health
Service Act (42 U.S.C. 290bb-25d) is repealed.
SEC. 5. AUTHORIZATION OF APPROPRIATIONS.
Section 399J of the Public Health Service Act (42 U.S.C. 280f-2) is
amended--
(1) in subsection (a), by striking ``$27,000,000 for each
of the fiscal years 1999 through 2003'' and inserting
``$42,000,000 for fiscal year 2021 and such sums as may be
necessary for each of fiscal years 2022 through 2025''; and
(2) by amending subsection (b), to read as follows:
``(b) Interagency Coordinating Committee on Fetal Alcohol Spectrum
Disorders.--From amounts appropriated for a fiscal year under
subsection (a), the Secretary may use not to exceed $2,000,000 of such
amounts for the operations of the Interagency Coordinating Committee on
Fetal Alcohol Spectrum Disorders under section 399H-1.''.
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