[Congressional Bills 118th Congress]
[From the U.S. Government Publishing Office]
[H.R. 5012 Introduced in House (IH)]
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118th CONGRESS
1st Session
H. R. 5012
To improve research and data collection on stillbirths, and for other
purposes.
_______________________________________________________________________
IN THE HOUSE OF REPRESENTATIVES
July 27, 2023
Mrs. Kim of California (for herself, Ms. Castor of Florida, Mr. Joyce
of Ohio, Ms. Kelly of Illinois, Mr. Bacon, Ms. Lois Frankel of Florida,
Mr. Kilmer, Mr. Fitzpatrick, Ms. Norton, Ms. Blunt Rochester, Ms.
Sherrill, Mrs. Trahan, and Mrs. Hinson) introduced the following bill;
which was referred to the Committee on Energy and Commerce
_______________________________________________________________________
A BILL
To improve research and data collection on stillbirths, and for other
purposes.
Be it enacted by the Senate and House of Representatives of the
United States of America in Congress assembled,
SECTION 1. SHORT TITLE.
This Act may be cited as the ``Stillbirth Health Improvement and
Education for Autumn Act of 2023'' or the ``SHINE for Autumn Act of
2023''.
SEC. 2. STILLBIRTH RESEARCH AND DATA COLLECTION IMPROVEMENTS.
Title III of the Public Health Service Act is amended by inserting
after section 317L-1 of such Act (42 U.S.C. 247b-13a) the following:
``SEC. 317L-2. STILLBIRTH RESEARCH AND DATA COLLECTION IMPROVEMENTS.
``(a) Stillbirth Surveillance and Risk Factor Studies.--
``(1) In general.--The Secretary may award grants to States
for purposes of--
``(A) conducting surveillance and collecting data,
including from existing datasets like State or sub-
State maternal mortality data and Fetal and Infant
Mortality Review data, with respect to stillbirths for
public health and research purposes;
``(B) building State and local public health
capacity to assess stillbirth data; and
``(C) collecting and reporting data on stillbirth
risk factors, including any quantifiable outcomes with
respect to such risk factors.
``(2) Condition.--As a condition of receipt of funds under
this section, all data collected shall be in a manner that
protects personal privacy and in a manner that is consistent
with applicable Federal and State privacy law, at a minimum.
``(3) Authorization of appropriations.--To carry out this
subsection, there is authorized to be appropriated $5,000,000
for each of fiscal years 2024 through 2028.
``(b) Guidelines and Educational Awareness Materials.--
``(1) In general.--The Secretary shall--
``(A) issue guidelines to State departments of
health and State and local vital statistics units on--
``(i) collecting data on stillbirth from
health care providers, and with the consent of
the woman who experienced the stillbirth,
including any such data with respect to the
clinical history, postmortem examination, and
placental pathology; and
``(ii) improving processes and training
related to stillbirth data collection and
reporting to ensure standardization and
completeness of data; and
``(B) develop, and make publicly available,
educational awareness materials on stillbirths.
``(2) Consultation.--In carrying out paragraph (1), the
Secretary may consult with--
``(A) national health care professional
associations;
``(B) national associations representing State and
local public health officials;
``(C) organizations that assist families with
burial support and bereavement services;
``(D) nurses and nurse practitioners;
``(E) obstetricians and gynecologists;
``(F) pediatricians;
``(G) maternal-fetal medicine specialists;
``(H) nurse midwives and midwives;
``(I) mental health professionals;
``(J) statisticians;
``(K) individuals who have experienced a
stillbirth; and
``(L) advocacy organizations representing such
individuals.
``(3) Authorization of appropriations.--To carry out this
subsection, there is authorized to be appropriated $1,000,000
for each of fiscal years 2024 through 2028.
``(c) Vital Statistics Unit Defined.--In this section, the term
`vital statistics unit' means the entity that is responsible for
maintaining vital records for a State, or a political subdivision of
such State, including official records of live births, deaths, fetal
deaths, marriages, divorces, and annulments.''.
SEC. 3. PERINATAL PATHOLOGY FELLOWSHIPS.
The Public Health Service Act is amended by inserting after section
1122 of such Act (42 U.S.C. 300c-12) the following:
``SEC. 1123. IMPROVING PERINATAL PATHOLOGY.
``(a) In General.--The Secretary shall incorporate into an existing
training program a Perinatal Pathology Fellowship Program, a
Postdoctoral Research Fellowship on Factors Associated with Stillbirth
Program, or both.
``(b) Activities.--Each program incorporated under subsection (a)
shall--
``(1) provide training in perinatal autopsy pathology;
``(2) provide practice-based learning opportunities to
foster exchange and connection with State efforts concerning
fetal death review that are supported under title V of the
Social Security Act;
``(3) conduct research on, and improve data collection with
respect to, stillbirths, including through fetal autopsies; and
``(4) address challenges in stillbirth education, research,
and data collection.
``(c) Authorization of Appropriations.--There is authorized to be
appropriated to carry out this section $3,000,000 for each of fiscal
years 2024 through 2028.''.
SEC. 4. REPORTS.
(a) Educational Guidelines Report.--
(1) In general.--Not later than five years after the date
of enactment of this Act, the Secretary of Health and Human
Services shall publish on a public website of the Department of
Health and Human Services a report with educational guidelines
on stillbirth and stillbirth risk factors.
(2) Contents.--Such report shall include, to the extent
practicable and appropriate, the guidelines issued and
educational awareness materials developed under section 317L-2
of the Public Health Service Act, as added by section 2 of this
Act.
(b) Progress Report.--Not later than five years after the date of
enactment of this Act, the Secretary of Health and Human Services shall
submit to the Congress a comprehensive report on the progress and
effectiveness of each program under section 1123 of the Public Health
Service Act, as added by section 3 of this Act.
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