[Congressional Bills 118th Congress]
[From the U.S. Government Publishing Office]
[S. 3532 Introduced in Senate (IS)]
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118th CONGRESS
1st Session
S. 3532
To amend the Public Health Service Act to provide for the establishment
of a Task Force on Youth Mental Health Data Integration.
_______________________________________________________________________
IN THE SENATE OF THE UNITED STATES
December 14, 2023
Mr. Casey (for himself, Mr. Brown, and Mr. Booker) introduced the
following bill; which was read twice and referred to the Committee on
Health, Education, Labor, and Pensions
_______________________________________________________________________
A BILL
To amend the Public Health Service Act to provide for the establishment
of a Task Force on Youth Mental Health Data Integration.
Be it enacted by the Senate and House of Representatives of the
United States of America in Congress assembled,
SECTION 1. SHORT TITLE.
This Act may be cited as the ``Youth Mental Health Data Act of
2023''.
SEC. 2. TASK FORCE ON YOUTH MENTAL HEALTH.
Title III of the Public Health Service Act (42 U.S.C. 241 et seq.)
is amended by inserting after section 317L-1 (42 U.S.C. 247b-13a) the
following:
``SEC. 317L-2. TASK FORCE ON YOUTH MENTAL HEALTH DATA INTEGRATION.
``(a) Establishment.--Not later than 90 days after the date of
enactment of the Youth Mental Health Data Act of 2023, the Secretary,
in consultation with the Behavioral Health Coordinating Council, the
Interagency Working Group on Youth Programs, and any other councils on
children designated by the Secretary, shall establish a task force, to
be known as the Task Force on Youth Mental Health Data Integration
(referred to in this section as the `Task Force'), to assess and make
recommendations to improve Federal data systems on youth mental health.
``(b) Membership.--
``(1) Composition.--The Task Force shall be composed of--
``(A) the Assistant Secretary for Health of the
Department of Health and Human Services (or the
Assistant Secretary's designee) who shall serve as the
Chair of the Task Force;
``(B) the Federal members under paragraph (2); and
``(C) the non-Federal members under paragraph (3).
``(2) Federal members.--In addition to the Assistant
Secretary for Health, the Federal members of the Task Force
shall consist of the heads of the following Federal departments
and agencies (or their designees):
``(A) The Administration for Children and Families.
``(B) The Agency for Healthcare Research and
Quality.
``(C) The Centers for Disease Control and
Prevention.
``(D) The Centers for Medicare & Medicaid Services.
``(E) The Health Resources and Services
Administration.
``(F) The Food and Drug Administration.
``(G) The Indian Health Service.
``(H) The Office of the Assistant Secretary for
Planning and Evaluation of the Department of Health and
Human Services.
``(I) The Office of Minority Health of the
Department of Health and Human Services.
``(J) The Office of the Surgeon General.
``(K) The National Institutes of Health.
``(L) The Substance Abuse and Mental Health
Services Administration.
``(M) The Administration for Strategic Preparedness
and Response.
``(N) The Department of Education.
``(O) The Department of Justice.
``(P) The Department of Labor.
``(Q) Such other Federal departments and agencies
as the Secretary determines appropriate, such as the
Department of Agriculture and the Department of Housing
and Urban Development.
``(3) Non-federal members.--The non-Federal members of the
Task Force shall--
``(A) compose not less than half of the total
membership of the Task Force;
``(B) be appointed by the Secretary; and
``(C) include--
``(i) representatives of medical societies
with expertise in youth mental health;
``(ii) representatives of nonprofit
organizations with expertise in youth mental
health;
``(iii) individuals under age 21, including
at least one such individual who has received a
diagnosis of a mental health condition;
``(iv) individuals ages 21 to 24, including
at least one such individual who has received a
diagnosis of a mental health condition;
``(v) representatives of media and
technology companies; and
``(vi) other representatives, as
appropriate.
``(4) Deadline for designating designees.--If the Assistant
Secretary for Health, or the head of a Federal department or
agency serving as a member of the Task Force under paragraph
(2), chooses to be represented on the Task Force by a designee,
the Assistant Secretary or head shall designate such designee
not later than 90 days after the date of the enactment of the
Youth Mental Health Data Act of 2023.
``(c) National Strategy.--The Task Force shall develop a national
strategy to improve data systems to understand youth mental health
needs, services, and evidence-based or evidence-informed interventions,
including processes for--
``(1) data integration across governments and health
systems, to enable real-time, longitudinal surveillance of
youth mental health trends, including de-identified data that
can be disaggregated, with appropriate protections to ensure
the anonymity and personal privacy of youth with mental health
conditions or functional mental health needs, by--
``(A) location, at the State and national levels;
``(B) age;
``(C) gender;
``(D) race;
``(E) ethnicity;
``(F) mental health diagnosis;
``(G) insurance status and payor type;
``(H) health care provider type, including primary
care provider type and, if applicable, mental health
specialist type;
``(I) youth involved in the juvenile justice
system;
``(J) youth involved in the child welfare system;
and
``(K) other relevant categories identified by the
Task Force;
``(2) tracking the use of electronic health records among
pediatric primary care and mental health service providers, and
barriers to such use;
``(3) developing and strengthening public-private research
partnerships between academic institutions, community-based
organizations, media and technology companies, health care
organizations, and others, as appropriate, to understand needs,
risk and protective factors, and outcomes for youth mental
health;
``(4) tracking the scale of use and outcomes associated
with innovative, scalable therapies and approaches, such as
self-guided, computerized, and group-based therapies and peer
support programs;
``(5) using dissemination and implementation science to
scale up evidence-based or evidence-informed prevention,
screening, and treatment of mental health conditions in systems
that serve youth, such as academic, health care, social
services, child welfare, and juvenile justice settings;
``(6) understanding social media and digital technology's
impact on youth mental health, evaluating guardrails for safe
use of media and digital technology by youth, and identifying
opportunities for the use of technology to engage youth and
families in positive mental health behaviors and suicide
prevention, including use of the 988 Suicide and Crisis
Lifeline;
``(7) facilitating information sharing between federally-
funded research and programs addressing youth mental health in
order to maximize the impact of such programs and inform
related State and Federal programs; and
``(8) creating a public-facing website that integrates and
displays real-time information on youth mental health needs and
trends, the status of federally-funded work to address such
needs, and opportunities for community-based organizations to
support youth mental health.
``(d) Meetings.--The Task Force shall--
``(1) meet not less than 4 times each year; and
``(2) convene public meetings, as appropriate, to fulfill
its duties under this section.
``(e) Reports to the Public and Federal Leaders.--The Task Force
shall make publicly available and submit to the heads of relevant
Federal departments and agencies, the Committee on Health, Education,
Labor, and Pensions of the Senate, the Committee on Energy and Commerce
of the House of Representatives, and other relevant congressional
committees, the following:
``(1) Not later than 1 years after the first meeting of the
Task Force, an initial national strategy under subsection (c).
``(2) Each year thereafter--
``(A) an updated national strategy under subsection
(c), as appropriate; and
``(B) a report summarizing the activities of the
Task Force.
``(f) Reports to Governors.--Upon finalizing the national strategy
under subsection (c), or a subsequent update to such strategy pursuant
to subsection (e)(2)(A), the Task Force shall submit to the governors
of all States a report describing opportunities for local- and State-
level partnerships identified under subsection (c)(3) and information
sharing described in subsection (c)(7).
``(g) Sunset.--The Task Force shall terminate on the date that is 5
years after the date on which the Task Force is established under
subsection (a).''.
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