[Congressional Bills 118th Congress]
[From the U.S. Government Publishing Office]
[S. 4762 Reported in Senate (RS)]
<DOC>
Calendar No. 504
118th CONGRESS
2d Session
S. 4762
To amend the Public Health Service Act to reauthorize programs and
research relating to autism, and for other purposes.
_______________________________________________________________________
IN THE SENATE OF THE UNITED STATES
July 24, 2024
Mr. Lujan (for himself and Ms. Collins) introduced the following bill;
which was read twice and referred to the Committee on Health,
Education, Labor, and Pensions
September 12, 2024
Reported by Mr. Sanders, with an amendment
[Strike out all after the enacting clause and insert the part printed
in italic]
_______________________________________________________________________
A BILL
To amend the Public Health Service Act to reauthorize programs and
research relating to autism, and for other purposes.
Be it enacted by the Senate and House of Representatives of the
United States of America in Congress assembled,
<DELETED>SECTION 1. SHORT TITLE.</DELETED>
<DELETED> This Act may be cited as the ``Autism Collaboration,
Accountability, Research, Education, and Support Act of 2024'' or the
``Autism CARES Act of 2024''.</DELETED>
<DELETED>SEC. 2. PROGRAMS RELATING TO AUTISM.</DELETED>
<DELETED> (a) Developmental Disabilities Surveillance and Research
Program.--Section 399AA of the Public Health Service Act (42 U.S.C.
280i) is amended--</DELETED>
<DELETED> (1) in subsection (a)(3), by striking ``tribe, or
a tribal'' and inserting ``Tribe, or a Tribal'';</DELETED>
<DELETED> (2) in subsection (d)(1)--</DELETED>
<DELETED> (A) in the paragraph heading, by striking
``tribe; tribal'' and inserting ``Tribe;
tribal'';</DELETED>
<DELETED> (B) by striking ``tribe'' and inserting
``Tribe''; and</DELETED>
<DELETED> (C) by striking ``tribal'' and inserting
``Tribal''; and</DELETED>
<DELETED> (3) in subsection (e), by striking ``2024'' and
inserting ``2029''.</DELETED>
<DELETED> (b) Autism Education, Early Detection, and Intervention.--
Section 399BB of the Public Health Service Act (42 U.S.C. 280i-1) is
amended--</DELETED>
<DELETED> (1) in subsections (b)(1) and (c), by striking
``culturally competent'' each place it appears and inserting
``culturally and linguistically appropriate'';</DELETED>
<DELETED> (2) in subsection (b)--</DELETED>
<DELETED> (A) in paragraph (2), by striking
``screening'' each place it appears and inserting
``screening and diagnostic'';</DELETED>
<DELETED> (B) in paragraph (3), by striking ``higher
risk'' and inserting ``increased likelihood'';
and</DELETED>
<DELETED> (C) in paragraph (7), by striking ``higher
risk'' and inserting ``increased
likelihood'';</DELETED>
<DELETED> (3) in subsection (e)(2), by adding at the end the
following:</DELETED>
<DELETED> ``(C) Report.--Not later than 2 years
after the date of enactment of the Autism CARES Act of
2024, the Secretary shall submit to the Committee on
Health, Education, Labor, and Pensions of the Senate
and the Committee on Energy and Commerce of the House
of Representatives a report that examines the need for
developmental-behavioral pediatricians and the
feasibility of expanding the developmental-behavioral
pediatrician training programs described in
subparagraph (A).'';</DELETED>
<DELETED> (4) by amending subsection (f) to read as
follows:</DELETED>
<DELETED> ``(f) Intervention.--The Secretary shall promote research,
through grants or contracts, which may include grants or contracts to
research centers or networks, to--</DELETED>
<DELETED> ``(1) develop and evaluate evidence-based
practices and interventions to improve outcomes for individuals
with autism spectrum disorder or other developmental
disabilities by addressing physical and behavioral health and
communication needs of such individuals across the
lifespan;</DELETED>
<DELETED> ``(2) develop guidelines for such evidence-based
interventions; and</DELETED>
<DELETED> ``(3) disseminate information related to such
evidence-based practices and interventions and guidelines.'';
and</DELETED>
<DELETED> (5) in subsection (g), by striking ``2024'' and
inserting ``2029''.</DELETED>
<DELETED> (c) Interagency Autism Coordinating Committee.--Section
399CC of the Public Health Service Act (42 U.S.C. 280i-2) is amended--
</DELETED>
<DELETED> (1) in subsection (b)--</DELETED>
<DELETED> (A) in paragraph (2), by striking
``develop a summary of'' and inserting ``summarize, on
an annual basis,'';</DELETED>
<DELETED> (B) in paragraph (5)(A), by striking
``proposed budgetary requirements'' and inserting ``a
professional judgment of anticipated budgetary needs'';
and</DELETED>
<DELETED> (C) in paragraph (6)(B), by striking ``an
annual'' and inserting ``a biennial''; and</DELETED>
<DELETED> (2) in subsection (f), by striking ``2024'' and
inserting ``2029''.</DELETED>
<DELETED> (d) Reports to Congress.--Section 399DD of the Public
Health Service Act (42 U.S.C. 280i-3) is amended--</DELETED>
<DELETED> (1) by striking ``2019'' each place it appears and
inserting ``2024'';</DELETED>
<DELETED> (2) in subsection (a)(1)--</DELETED>
<DELETED> (A) in the paragraph heading, by striking
``In general'' and inserting ``In general'';</DELETED>
<DELETED> (B) by striking ``Health, Education,
Labor, and Pensions Committee of the Senate and the
Energy and Commerce Committee'' and inserting
``Committee on Health, Education, Labor, and Pensions
of the Senate and the Committee on Energy and
Commerce''; and</DELETED>
<DELETED> (C) by striking ``Internet Web site'' and
inserting ``website''; and</DELETED>
<DELETED> (3) by adding at the end the following:</DELETED>
<DELETED> ``(c) Update on Young Adults and Youth Transitioning to
Adulthood.--Not later than 2 years after the date of enactment of the
Autism CARES Act of 2024, the Secretary, in coordination with other
Federal departments and agencies that serve individuals with autism
spectrum disorder, shall prepare and submit to the Committee on Health,
Education, Labor, and Pensions of the Senate and the Committee on
Energy and Commerce of the House of Representatives an update to the
report required pursuant to subsection (b) of this section, as added by
section 6 of the Autism CARES Act of 2014 and in effect before the date
of enactment of the Autism CARES Act of 2019, concerning young adults
with autism spectrum disorder and the challenges related to the
transition from existing school-based services to services available
during adulthood.''.</DELETED>
<DELETED> (e) Authorization of Appropriations.--Section 399EE of the
Public Health Service Act (42 U.S.C. 280i-4) is amended--</DELETED>
<DELETED> (1) in subsection (a), by striking ``$23,100,000
for each of fiscal years 2020 through 2024'' and inserting
``$28,100,000 for each of fiscal years 2025 through
2029'';</DELETED>
<DELETED> (2) in subsection (b), by striking ``$50,599,000
for each of fiscal years 2020 through 2024'' and inserting
``$56,344,000 for each of fiscal years 2025 through 2029'';
and</DELETED>
<DELETED> (3) in subsection (c), by striking ``$296,000,000
for each of fiscal years 2020 through 2024'' and inserting
``$306,000,000 for each of fiscal years 2025 through
2029''.</DELETED>
<DELETED>SEC. 3. EXPANSION, INTENSIFICATION, AND COORDINATION OF
ACTIVITIES OF NATIONAL INSTITUTES OF HEALTH WITH RESPECT
TO RESEARCH ON AUTISM SPECTRUM DISORDER.</DELETED>
<DELETED> Section 409C of the Public Health Service Act (42 U.S.C.
284g) is amended--</DELETED>
<DELETED> (1) in subsection (a)--</DELETED>
<DELETED> (A) in paragraph (1)--</DELETED>
<DELETED> (i) by striking ``including
pathology'' and inserting ``such as
pathology''; and</DELETED>
<DELETED> (ii) by inserting ``psychiatry,
psychology, gerontology, developmental
behavioral pediatrics, audiology,'' after
``toxicology,''; and</DELETED>
<DELETED> (B) by adding at the end the
following:</DELETED>
<DELETED> ``(4) Considerations.--In carrying out this
section, the Director shall take into consideration the various
needs of individuals with autism spectrum disorder with respect
to services and supports and addressing co-occurring
conditions.''; and</DELETED>
<DELETED> (2) in subsection (b)--</DELETED>
<DELETED> (A) in paragraph (2), by inserting
``gerontology,'' after ``behavioral psychology,'';
and</DELETED>
<DELETED> (B) in paragraph (5)(B), by striking
``period of'' and inserting ``period''.</DELETED>
<DELETED>SEC. 4. TECHNICAL ASSISTANCE TO IMPROVE ACCESS TO
COMMUNICATION TOOLS.</DELETED>
<DELETED> (a) In General.--The Secretary of Health and Human
Services (referred to in this section as the ``Secretary'') may, at the
request of a State, Indian Tribe or Tribal organization, locality, or
territory, provide training and technical assistance to such
jurisdiction on the manner in which Federal funding administered by the
Secretary may be used to provide individuals with autism spectrum
disorder and other developmental disabilities with access to evidence-
based services, tools, and technologies that support communication
needs.</DELETED>
<DELETED> (b) Annual Report.--The Secretary shall annually prepare
and submit to the Committee on Health, Education, Labor, and Pensions
of the Senate and the Committee on Education and the Workforce and the
Committee on Energy and Commerce of the House of Representatives a
report summarizing any technical assistance provided by the Secretary
in the preceding fiscal year under subsection (a) and any advancements
in the development or evaluation of such evidence-based services,
tools, and technologies.</DELETED>
SECTION 1. SHORT TITLE.
This Act may be cited as the ``Autism Collaboration,
Accountability, Research, Education, and Support Act of 2024'' or the
``Autism CARES Act of 2024''.
SEC. 2. PROGRAMS RELATING TO AUTISM.
(a) Developmental Disabilities Surveillance and Research Program.--
Section 399AA of the Public Health Service Act (42 U.S.C. 280i) is
amended--
(1) in subsection (a)(3), by striking ``tribe, or a
tribal'' and inserting ``Tribe, or a Tribal'';
(2) in subsection (d)(1)--
(A) in the paragraph heading, by striking ``tribe;
tribal'' and inserting ``Tribe; tribal'';
(B) by striking ``tribe'' and inserting ``Tribe'';
and
(C) by striking ``tribal'' and inserting
``Tribal''; and
(3) in subsection (e), by striking ``2024'' and inserting
``2029''.
(b) Autism Education, Early Detection, and Intervention.--Section
399BB of the Public Health Service Act (42 U.S.C. 280i-1) is amended--
(1) in subsections (b)(1) and (c), by striking ``culturally
competent'' each place it appears and inserting ``culturally
and linguistically appropriate'';
(2) in subsection (b)--
(A) in paragraph (2), by striking ``screening''
each place it appears and inserting ``screening and
diagnostic'';
(B) in paragraph (3), by striking ``higher risk''
and inserting ``increased likelihood''; and
(C) in paragraph (7), by striking ``higher risk''
and inserting ``increased likelihood'';
(3) in subsection (e)--
(A) in paragraph (1)--
(i) in the matter preceding subparagraph
(A), by inserting ``and strengthen the capacity
of'' after ``expand'';
(ii) in subparagraph (A)--
(I) by striking ``in States that do
not have such a program;'' and
inserting a semicolon; and
(II) by striking ``expand existing
or develop new'' and inserting ``expand
and strengthen the capacity of
existing, or, in States that do not
have such a program, develop new,'';
and
(iii) in subparagraph (B)(v), by inserting
``or other providers, as applicable'' before
the semicolon; and
(iv) by amending subparagraph (C) to read
as follows:
``(C) program sites--
``(i) provide culturally and linguistically
appropriate services;
``(ii) take a multidisciplinary approach
and have experience working with underserved
populations; and
``(iii) identify opportunities to partner
with community-based organizations to expand
the capacity of communities to serve
individuals with autism spectrum disorder or
other developmental disabilities.''; and
(B) in paragraph (2), by adding at the end the
following:
``(C) Report.--Not later than 2 years after the
date of enactment of the Autism CARES Act of 2024, the
Secretary shall submit to the Committee on Health,
Education, Labor, and Pensions of the Senate and the
Committee on Energy and Commerce of the House of
Representatives a report that examines the need for
developmental-behavioral pediatricians and the
feasibility of expanding the developmental-behavioral
pediatrician training programs described in
subparagraph (A).'';
(4) by amending subsection (f) to read as follows:
``(f) Intervention.--The Secretary shall promote research, through
grants or contracts, which may include grants or contracts to research
centers or networks, to--
``(1) develop and evaluate evidence-based practices and
interventions to improve outcomes for individuals with autism
spectrum disorder or other developmental disabilities by
addressing physical and behavioral health and communication
needs of such individuals across the lifespan;
``(2) develop guidelines for such evidence-based
interventions; and
``(3) disseminate information related to such evidence-
based practices and interventions and guidelines.''; and
(5) in subsection (g), by striking ``2024'' and inserting
``2029''.
(c) Interagency Autism Coordinating Committee.--Section 399CC of
the Public Health Service Act (42 U.S.C. 280i-2) is amended--
(1) in subsection (b)--
(A) in paragraph (2), by striking ``develop a
summary of'' and inserting ``summarize, on an annual
basis,''; and
(B) in paragraph (6)(B), by striking ``an annual
update to'' and inserting ``a biennial update on''; and
(2) in subsection (f), by striking ``2024'' and inserting
``2029''.
(d) Reports to Congress.--Section 399DD of the Public Health
Service Act (42 U.S.C. 280i-3) is amended--
(1) by striking ``2019'' each place it appears and
inserting ``2024'';
(2) in subsection (a)(1)--
(A) in the paragraph heading, by striking ``In
general'' and inserting ``In general'';
(B) by striking ``Health, Education, Labor, and
Pensions Committee of the Senate and the Energy and
Commerce Committee'' and inserting ``Committee on
Health, Education, Labor, and Pensions of the Senate
and the Committee on Energy and Commerce''; and
(C) by striking ``Internet Web site'' and inserting
``website'';
(3) in subsection (b)--
(A) in the subsection heading, by striking ``Health
and Well-Being'' and inserting ``Mental Health Needs'';
(B) in paragraph (1), by striking ``health and
well-being'' and inserting ``mental health needs''; and
(C) by amending paragraph (2) to read as follows:
``(2) Contents.--The report submitted under paragraph (1)
shall contain--
``(A) an overview of policies and programs relevant
to the mental health of individuals with autism
spectrum disorder across their lifespan, including an
identification of existing Federal laws, regulations,
policies, research, and programs; and
``(B) recommendations to improve mental health
outcomes and address related disparities in mental
health care for individuals with autism spectrum
disorder, including prevention, care coordination, and
community-based services.''; and
(4) by adding at the end the following:
``(c) Update on Young Adults and Youth Transitioning to
Adulthood.--Not later than 2 years after the date of enactment of the
Autism CARES Act of 2024, the Secretary, in coordination with other
Federal departments and agencies that serve individuals with autism
spectrum disorder, shall prepare and submit to the Committee on Health,
Education, Labor, and Pensions of the Senate and the Committee on
Energy and Commerce of the House of Representatives an update to the
report required pursuant to subsection (b) of this section, as added by
section 6 of the Autism CARES Act of 2014 and in effect before the date
of enactment of the Autism CARES Act of 2019, concerning young adults
with autism spectrum disorder and the challenges related to the
transition from existing school-based services to services available
during adulthood.''.
(e) Authorization of Appropriations.--Section 399EE of the Public
Health Service Act (42 U.S.C. 280i-4) is amended--
(1) in subsection (a), by striking ``$23,100,000 for each
of fiscal years 2020 through 2024'' and inserting ``$28,100,000
for each of fiscal years 2025 through 2029'';
(2) in subsection (b), by striking ``$50,599,000 for each
of fiscal years 2020 through 2024'' and inserting ``$56,344,000
for each of fiscal years 2025 through 2029''; and
(3) in subsection (c), by striking ``$296,000,000 for each
of fiscal years 2020 through 2024'' and inserting
``$306,000,000 for each of fiscal years 2025 through 2029''.
SEC. 3. EXPANSION, INTENSIFICATION, AND COORDINATION OF ACTIVITIES OF
NATIONAL INSTITUTES OF HEALTH WITH RESPECT TO RESEARCH ON
AUTISM SPECTRUM DISORDER.
Section 409C of the Public Health Service Act (42 U.S.C. 284g) is
amended--
(1) in subsection (a)--
(A) in paragraph (1)--
(i) by striking ``including pathology'' and
inserting ``such as pathology''; and
(ii) by inserting ``psychiatry, psychology,
gerontology, developmental behavioral
pediatrics, audiology,'' after ``toxicology,'';
and
(B) by adding at the end the following:
``(4) Considerations.--In carrying out this section, the
Director shall take into consideration the various needs of
individuals with autism spectrum disorder with respect to
services and supports and addressing co-occurring
conditions.'';
(2) in subsection (b)--
(A) in paragraph (2)--
(i) by striking ``including the fields of''
and inserting ``in fields such as''; and
(ii) by inserting ``gerontology,'' after
``behavioral psychology,''; and
(B) in paragraph (5)--
(i) in subparagraph (A), by striking
``five'' and inserting ``7''; and
(ii) in subparagraph (B), by striking
``period of'' and inserting ``period''; and
(3) by adding at the end the following:
``(e) Budget Estimate.--For each of fiscal years 2026 through 2029,
the Director shall prepare and submit, directly to the President for
review and transmittal to Congress, an annual budget estimate for the
initiatives of the National Institutes of Health pursuant to the
strategic plan developed under section 399CC(b)(5) and updated under
section 399CC(b)(6)(B), after reasonable opportunity for comment (but
without change) by the Secretary and the Interagency Autism
Coordinating Committee established under section 399CC.''.
SEC. 4. TECHNICAL ASSISTANCE TO IMPROVE ACCESS TO COMMUNICATION TOOLS.
(a) In General.--The Secretary of Health and Human Services
(referred to in this section as the ``Secretary'') may, at the request
of a State, Indian Tribe or Tribal organization, locality, or
territory, provide training and technical assistance to such
jurisdiction on the manner in which Federal funding administered by the
Secretary may be used to provide individuals with autism spectrum
disorder and other developmental disabilities with access to evidence-
based services, tools, and technologies that support communication
needs.
(b) Annual Report.--The Secretary shall annually prepare and submit
to the Committee on Health, Education, Labor, and Pensions of the
Senate and the Committee on Education and the Workforce and the
Committee on Energy and Commerce of the House of Representatives a
report summarizing any technical assistance provided by the Secretary
in the preceding fiscal year under subsection (a) and any advancements
in the development or evaluation of the evidence-based services, tools,
and technologies described in such subsection.
Calendar No. 504
118th CONGRESS
2d Session
S. 4762
_______________________________________________________________________
A BILL
To amend the Public Health Service Act to reauthorize programs and
research relating to autism, and for other purposes.
_______________________________________________________________________
September 12, 2024
Reported with an amendment