Text: H.R.3082 — 102nd Congress (1991-1992)All Information (Except Text)

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Union Calendar No. 343
102d CONGRESS
2d Session
H. R. 3082
[Report No. 102-623]
A BILL
To amend the Alzheimer's Disease and Related Dementias Services Research
Act of 1986 to reauthorize the Act, and for other purposes.
June 29, 1992
Reported with an amendment, committed to the Committee of the Whole House
on the State of the Union, and ordered to be printed
HR 3082 RH
Union Calendar No. 343
102d CONGRESS
2d Session
 H. R. 3082
[Report No. 102-623]
To amend the Alzheimer's Disease and Related Dementias Services Research
Act of 1986 to reauthorize the Act, and for other purposes.
IN THE HOUSE OF REPRESENTATIVES
July 29, 1991
Ms. SNOWE (for herself and Mr. BRUCE) introduced the following bill; which
was referred to the Committee on Energy and Commerce
June 29, 1992
Additional sponsors: Mr. COX of Illinois, Mr. DELLUMS, Mr. KOLTER,
Mr. MCDERMOTT, Mr. BOUCHER, Mr. HORTON, Mr. WOLF, Mr. WILSON, Mr. JONTZ,
Mr. SISISKY, Mr. BACCHUS, Mr. LEVIN of Michigan, Mr. LANCASTER, Mr. LEWIS of
Florida, Mrs. COLLINS of Illinois, Mr. DOWNEY, Mr. SABO, Mr. ROE, Mr. TOWNS,
Mr. FROST, Ms. NORTON, Mr. HALL of Texas, Mr. ENGLISH, Mr. GEJDENSON,
Mr. DWYER of New Jersey, Mr. FOGLIETTA, Mr. MARKEY, Mr. PAXON, Mr. KOPETSKI,
Mr. GUNDERSON, Mr. BLILEY, Mr. WOLPE, Mrs. LOWEY of New York, Mr. SYNAR,
Mr. KLUG, Mr. RANGEL, Mrs. JOHNSON of Connecticut, Mr. EMERSON, Mr. SOLOMON,
Mr. DEFAZIO, Mr. JEFFERSON, Mr. LEVINE of California, Mr. JONES of North
Carolina, Mr. BLAZ, Mr. DIXON, Ms. PELOSI, Mr. EVANS, Ms. HORN, and Mrs. MEYERS
of Kansas
June 29, 1992
Reported with an amendment, committed to the Committee of the Whole House
on the State of the Union, and ordered to be printed
[Strike out all after the enacting clause and insert the part printed
in italic]
[For text of introduced bill, see copy of bill as introduced on July 29, 1991]
A BILL
To amend the Alzheimer's Disease and Related Dementias Services Research
Act of 1986 to reauthorize the Act, and for other purposes.
  Be it enacted by the Senate and House of Representatives of the United
  States of America in Congress assembled,
SECTION 1. SHORT TITLE.
  This Act may be cited as the `Alzheimer's Disease and Related Dementias
  Research Amendments of 1992'.
SEC. 2. SHORT TITLE OF ACT.
  (a) IN GENERAL- Section 901 of the Alzheimer's Disease and Related Dementias
  Services Research Act of 1986 (42 U.S.C. 11201 note) is amended by striking
  `Services Research Act of 1986' and inserting `Research Act of 1992'.
  (b) CONFORMING AMENDMENT- Public Law 99-660 is amended in the heading for
  title IX by striking `SERVICES'.
SEC. 3. REFERENCES.
  Except as otherwise specifically provided, whenever in this Act an amendment
  or repeal is expressed in terms of an amendment to, or a repeal of, a
  section or other provision, the reference shall be considered to be made
  to that section or other provision of the Alzheimer's Disease and Related
  Dementias Research Act of 1992, as designated pursuant to the amendment
  made by section 2 of this Act.
SEC. 4. FINDINGS.
  Section 902 (42 U.S.C. 11201) is amended--
  (1) by redesignating paragraphs (7) through (12) as paragraphs (9) through
  (14);
  (2) by striking paragraphs (4), (5), and (6); and
  (3) by inserting after paragraph (3) the following new paragraphs:
  `(4) the cost of caring for individuals with Alzheimer's disease and
  related dementias is great, and conservative estimates range between
  $38,000,000,000 and $42,000,000,000 per year solely for direct costs;
  `(5) progress in the neurosciences and behavioral sciences has demonstrated
  the interdependence and mutual reinforcement of basic science, clinical
  research, and services research for Alzheimer's disease and related
  dementias;
  `(6) programs initiated as part of the Decade of the Brain are likely to
  provide significant progress in understanding the fundamental mechanisms
  underlying the causes of, and treatments for, Alzheimer's disease and
  related dementias;
  `(7) although substantial progress has been made in recent years in
  identifying possible leads to the causes of Alzheimer's disease and
  related dementias, and more progress can be expected in the near future,
  there is little likelihood of a breakthrough in the immediate future that
  would eliminate or substantially reduce--
  `(A) the number of individuals with the disease and dementias; or
  `(B) the difficulties of caring for the individuals;
  `(8) the responsibility for care of individuals with Alzheimer's disease
  and related dementias falls primarily on their families, and the care is
  very often financially and emotionally devastating;'.
SEC. 5. COUNCIL ON ALZHEIMER'S DISEASE.
  (a) ESTABLISHMENT- Section 911 (42 U.S.C. 11211) is amended--
  (1) in subsection (a)--
  (A) in paragraph (2), by striking `Surgeon General of the United States'
  and inserting `Surgeon General of the Public Health Service';
  (B) in paragraph (6), by striking `and Communicative Diseases' and inserting
  `Disorders';
  (C) by striking paragraphs (10), (11), and (12); and
  (D) by adding at the end the following new paragraphs:
  `(10) the Administrator for Health Care Policy and Research;
  `(11) the Administrator of the Health Resources and Services Administration;
  `(12) the Director of the National Center for Nursing Research;
  `(13) the Chief Medical Director of the Department of Veterans Affairs;
  `(14) the Director of the National Center for Health Statistics; and
  `(15) such additional members as the Secretary of Health and Human Services
  (hereinafter referred to as the `Secretary') considers appropriate.';
  (2) by striking subsection (b) and inserting the following new subsection:
  `(b) The Assistant Secretary for Health shall serve as the Chairman of
  the Council.'; and
  (3) in subsection (d), by striking `twice' and inserting `once'.
  (b) FUNCTIONS- Section 912 (42 U.S.C. 11212) is amended--
  (1) in subsection (a)--
  (A) by adding `and' at the end of paragraph (3);
  (B) by striking `; and' at the end of paragraph (4) and inserting a
  period; and
  (C) by striking paragraph (5); and
  (2) by striking subsection (b) and inserting the following new subsection:
  `(b)(1) The Chairman of the Council shall annually submit to the committees
  listed in paragraph (2) a report containing information on--
  `(A) progress made by research, sponsored by the Federal Government,
  on Alzheimer's disease and related dementias; and
  `(B) new directions that the Council considers potentially important in
  research on Alzheimer's disease and related dementias.
  `(2) The Chairman of the Council shall submit the report described in
  paragraph (1) to--
  `(A) the Committee on Energy and Commerce of the House of Representatives;
  `(B) the Committee on Ways and Means of the House of Representatives;
  `(C) the Committee on Veterans' Affairs of the House of Representatives;
  `(D) the Select Committee on Aging of the House of Representatives;
  `(E) the Committee on Labor and Human Resources of the Senate;
  `(F) the Committee on Finance of the Senate;
  `(G) the Committee on Veterans' Affairs of the Senate; and
  `(H) the Special Committee on Aging of the Senate.'.
SEC. 6. ADVISORY PANEL ON ALZHEIMER'S DISEASE.
  (a) ESTABLISHMENT- Section 921 (42 U.S.C. 11221) is amended--
  (1) in subsection (a)(2), by striking `the Director of the National Center
  for Health Services Research and Health Care Technology Assessment' and
  inserting `the Administrator for Health Care Policy and Research';
  (2) in subsection (d), to read as follows:
  `(d)(1)(A) Except as provided in subparagraph (B), members of the Panel
  appointed under subsection (a)(1) shall each serve for a term of 3 years.
  `(B) Of the members appointed under subsection (a)(1) that are serving on
  the Panel on the day before the date of the enactment of this subsection--
  `(i) five shall serve for a term that expires on such date;
  `(ii) five shall serve for a term that expires 1 year after such date; and
  `(iii) five shall serve for a term that expires 2 years after such date.
  `(2) A vacancy on the Panel shall be filled in the same manner as the
  original appointment was made, and not later than 90 days after the date
  on which the vacancy first arises.  A vacancy on the Panel shall not affect
  the powers of the Panel.';
  (3) in subsection (f), by striking `twice' and inserting `once';
  (4) in subsection (h), by striking `of $100 per day' and inserting `at the
  daily equivalent of the maximum rate specified for GS-15 of the General
  Schedule under section 5332 of title 5, United States Code,'; and
  (5) by adding at the end the following new subsection:
  `(i) Notwithstanding section 14 of the Federal Advisory Committee Act
  (5 U.S.C. App.), on September 30, 1994, the Panel shall be abolished and
  all programs established under this part shall terminate.'.
  (b) AUTHORIZATION OF APPROPRIATIONS- Section 923 (42 U.S.C. 11223) is
  amended to read as follows:
`SEC. 923. AUTHORIZATION OF APPROPRIATIONS.
  `There are authorized to be appropriated to carry out this part such sums
  as may be necessary for each of the fiscal years 1992 through 1996.'.
SEC. 7. RESEARCH RELATING TO SERVICES FOR INDIVIDUALS WITH ALZHEIMER'S
DISEASE AND RELATED DEMENTIAS AND FAMILIES OF THE INDIVIDUALS.
  (a) Responsibilities of the National Institute of Mental Health-
  (1) GRANTS- Section 931 (42 U.S.C. 11251) is amended--
  (A) by striking subsections (b)(2) and (c);
  (B) in subsection (a), by inserting `and specialized care' after `services';
  and
  (C) in subsection (b)(1)--
  (i) by striking `Within 6 months' and all that follows through `plan
  shall' and inserting `The Director of the National Institute of Mental
  Health shall';
  (ii) in subparagraph (A)--
  (I) by striking `provide for' and inserting `ensure that the research
  conducted under subsection (a) includes';
  (II) by striking clause (iii) and inserting the following new clause:
  `(iii) the optimal range, types, and cost-effectiveness of services
  and specialized care for individuals with Alzheimer's disease and
  related dementias and for their families, in community, residential,
  and institutional settings, particularly with respect to--
  `(I) the design of the services and care;
  `(II) appropriate staffing for the provision of the services and care;
  `(III) the timing of the services and care during the progression of the
  disease or dementias; and
  `(IV) the appropriate mix and coordination of the services and specialized
  care;';
  (III) in clause (iv), by inserting `the evaluation of best practices for
  the development of' before `appropriate'; and
  (IV) in clauses (v) and (vii), by striking `and nursing home services'
  and inserting `nursing home services, and other residential services and
  care'; and
  (iii) in subparagraph (B), by striking `research carried out under the plan'
  and inserting `the research'.
  (2) CONFORMING AMENDMENTS- Section 931(b), as amended by paragraph (1)
  of this subsection, is amended--
  (A) by striking `(1)';
  (B) by redesignating subparagraphs (A) and (B) as paragraphs (1) and
  (2), respectively;
  (C) in paragraph (1) (as so redesignated), by redesignating clauses (i)
  through (vii) as subparagraphs (A) through (G), respectively; and
  (D) in paragraph (1)(C) (as so redesignated), by redesignating subclauses
  (I) through (IV) as clauses (i) through (iv), respectively.
  (3) AUTHORIZATION OF APPROPRIATIONS- Section 933 (42 U.S.C. 11253) is
  amended to read as follows:
`SEC. 933. AUTHORIZATION OF APPROPRIATIONS.
  `There are authorized to be appropriated to carry out this subpart such
  sums as may be necessary for each of the fiscal years 1992 through 1996.'.
  (b) RESPONSIBILITIES OF THE AGENCY FOR HEALTH CARE POLICY AND RESEARCH-
  (1) RESEARCH PROGRAM AND PLAN- Subpart 2 of part D (42 U.S.C. 11261 et
  seq.) is amended--
  (A) in the heading for the subpart, by striking `National Center' and all
  that follows and inserting the following: `Agency for Health Care Policy
  and Research'; and
  (B) by amending section 934 to read as follows:
`SEC. 934. RESEARCH PROGRAM.
  `(a) GRANTS FOR RESEARCH- The Administrator for Health Care Policy
  and Research shall conduct, or make grants for the conduct of, research
  relevant to appropriate services for individuals with Alzheimer's  disease
  and related dementias and for their families.
  `(b) RESEARCH SUBJECTS- The Administrator for Health Care Policy and
  Research shall ensure that research conducted under subsection (a) shall
  include research concerning--
  `(1) improving the organization, delivery, and financing of services for
  individuals with Alzheimer's disease and related dementias and for their
  families, including research on the design, staffing, and operation of
  special care units for the individuals in institutional settings;
  `(2) the costs incurred by individuals with Alzheimer's disease and related
  dementias and by their families in obtaining services, particularly services
  that are essential to the individuals and that are not generally required
  by other patients under long-term care programs; and
  `(3) the costs, cost-effectiveness, and effectiveness of various
  interventions to provide services for individuals with Alzheimer's disease
  and related dementias and for their families.'
  (2) AUTHORIZATION OF APPROPRIATIONS- Section 936 (42 U.S.C. 11263) is
  amended to read as follows:
`SEC. 936. AUTHORIZATION OF APPROPRIATIONS.
  `There are authorized to be appropriated to carry out this subpart such
  sums as may be necessary for each of the fiscal years 1992 through 1996.'.
SEC. 8. TECHNICAL CORRECTION.
  Section 782(g)(1)(A) of the Public Health Service Act (42
  U.S.C. 295g-2(g)(1)(A)) is amended by inserting `a school of osteopathic
  medicine,' after `a school of medicine,'.