S.2663 - Newborn Screening Saves Lives Act of 2006109th Congress (2005-2006)
|Sponsor:||Sen. Dodd, Christopher J. [D-CT] (Introduced 04/27/2006)|
|Committees:||Senate - Health, Education, Labor, and Pensions|
|Latest Action:||Senate - 04/27/2006 Read twice and referred to the Committee on Health, Education, Labor, and Pensions. (text of measure as introduced: CR S3708-3710) (All Actions)|
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Summary: S.2663 — 109th Congress (2005-2006)All Information (Except Text)
Introduced in Senate (04/27/2006)
Newborn Screening Saves Lives Act of 2006 - Amends the Public Health Service Act to require the Secretary of Health and Human Services, acting through the Associate Administrator of the Maternal and Child Health Bureau of the Health Resources and Services Administration (HRSA), to awards grants to eligible entities to: (1) provide education and training in newborn screening and congenital, genetic, and metabolic disorders to health care professionals and newborn screening laboratory personnel; (2) develop educational programs about newborn screening for parents, families, and patient advocacy and support groups; and (3) establish, maintain, and operate a system to assess and coordinate treatment relating to congenital, genetic, and metabolic disorders.
Requires the Advisory Committee on Heritable Disorders in Newborns and Children to: (1) recommend a uniform screening panel for newborn screening programs that includes the heritable disorders for which all newborns should be screened; and (2) develop a model decision-matrix for newborn screening program expansion.
Directs the Secretary to adopt or reject any new or pending recommendations by the Advisory Committee.
Requires the Secretary, acting through the Director of the Centers for Disease Control and Prevention (CDC), to: (1) provide for quality assurance for screening laboratories; (2) provide for population-based pilot testing for evaluating use of new screening tools on a mass scale; (3) collect, analyze, and make available data on certain heritable disorders; and (4) operate regional centers for the conduct of applied epidemiological research on the prevention of such disorders.