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Titles (2)

Short Titles

Short Titles - Senate

Short Titles as Introduced

Newborn Screening Saves Lives Act of 2006

Official Titles

Official Titles - Senate

Official Titles as Introduced

A bill to amend the Public Health Service Act to establish grant programs to provide for education and outreach on newborn screening and coordinated followup care once newborn screening has been conducted, to reauthorize programs under part A of title XI of such Act, and for other purposes.


Actions Overview (1)

Date
04/27/2006Introduced in Senate

All Actions (2)

Date
04/27/2006Read twice and referred to the Committee on Health, Education, Labor, and Pensions. (text of measure as introduced: CR S3708-3710)
Action By: Senate
04/27/2006Sponsor introductory remarks on measure. (CR S3706-3707)
Action By: Senate

Committees (1)

Committees, subcommittees and links to reports associated with this bill are listed here, as well as the nature and date of committee activity and Congressional report number.

Committee / Subcommittee Date Activity Reports
Senate Health, Education, Labor, and Pensions04/27/2006 Referred to

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Latest Summary (1)

There is one summary for S.2663. View summaries

Shown Here:
Introduced in Senate (04/27/2006)

Newborn Screening Saves Lives Act of 2006 - Amends the Public Health Service Act to require the Secretary of Health and Human Services, acting through the Associate Administrator of the Maternal and Child Health Bureau of the Health Resources and Services Administration (HRSA), to awards grants to eligible entities to: (1) provide education and training in newborn screening and congenital, genetic, and metabolic disorders to health care professionals and newborn screening laboratory personnel; (2) develop educational programs about newborn screening for parents, families, and patient advocacy and support groups; and (3) establish, maintain, and operate a system to assess and coordinate treatment relating to congenital, genetic, and metabolic disorders.

Requires the Advisory Committee on Heritable Disorders in Newborns and Children to: (1) recommend a uniform screening panel for newborn screening programs that includes the heritable disorders for which all newborns should be screened; and (2) develop a model decision-matrix for newborn screening program expansion.

Directs the Secretary to adopt or reject any new or pending recommendations by the Advisory Committee.

Requires the Secretary, acting through the Director of the Centers for Disease Control and Prevention (CDC), to: (1) provide for quality assurance for screening laboratories; (2) provide for population-based pilot testing for evaluating use of new screening tools on a mass scale; (3) collect, analyze, and make available data on certain heritable disorders; and (4) operate regional centers for the conduct of applied epidemiological research on the prevention of such disorders.