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Titles Actions Overview All Actions Cosponsors Committees Related Bills Subjects Latest Summary All Summaries

Titles (3)

Short Titles

Short Titles - House of Representatives

Short Titles as Reported to House

Newborn Screening Saves Lives Act of 2008

Short Titles as Introduced

Newborn Screening Saves Lives Act of 2007

Official Titles

Official Titles - House of Representatives

Official Title as Introduced

To amend the Public Health Service Act to establish grant programs to provide for education and outreach on newborn screening and coordinated followup care once newborn screening has been conducted, to reauthorize programs under part A of title XI of such Act, and for other purposes.

Actions Overview (2)

Date Actions Overview
04/08/2008Reported (Amended) by the Committee on Energy and Commerce. H. Rept. 110-570.
10/15/2007Introduced in House

All Actions (9)

Date All Actions
04/08/2008Placed on the Union Calendar, Calendar No. 352.
Action By: House of Representatives
04/08/2008Reported (Amended) by the Committee on Energy and Commerce. H. Rept. 110-570.
03/13/2008Ordered to be Reported (Amended) by Voice Vote.
Action By: Committee on Energy and Commerce
03/13/2008Committee Consideration and Mark-up Session Held.
Action By: Committee on Energy and Commerce
03/11/2008Forwarded by Subcommittee to Full Committee (Amended) by Voice Vote .
Action By: House Energy and Commerce Subcommittee on Health
03/11/2008Subcommittee Consideration and Mark-up Session Held.
Action By: House Energy and Commerce Subcommittee on Health
10/16/2007Referred to the Subcommittee on Health.
Action By: Committee on Energy and Commerce
10/15/2007Referred to the House Committee on Energy and Commerce.
Action By: House of Representatives
10/15/2007Introduced in House
Action By: House of Representatives

Cosponsors (81)

* = Original cosponsor
CosponsorDate Cosponsored
Rep. Simpson, Michael K. [R-ID-2]* 10/15/2007
Rep. Reynolds, Thomas M. [R-NY-26]* 10/15/2007
Rep. Waxman, Henry A. [D-CA-30]* 10/15/2007
Rep. McCarthy, Carolyn [D-NY-4] 10/18/2007
Rep. Baldwin, Tammy [D-WI-2] 10/18/2007
Rep. Rush, Bobby L. [D-IL-1] 10/18/2007
Rep. Matsui, Doris O. [D-CA-5] 10/18/2007
Rep. Rothman, Steven R. [D-NJ-9] 10/18/2007
Rep. Eshoo, Anna G. [D-CA-14] 10/18/2007
Rep. Pearce, Stevan [R-NM-2] 10/18/2007
Rep. Towns, Edolphus [D-NY-10] 10/18/2007
Rep. Ramstad, Jim [R-MN-3] 10/31/2007
Rep. Schiff, Adam B. [D-CA-29] 10/31/2007
Rep. Schakowsky, Janice D. [D-IL-9] 10/31/2007
Rep. Spratt, John M., Jr. [D-SC-5] 10/31/2007
Rep. Fattah, Chaka [D-PA-2] 10/31/2007
Rep. Gordon, Bart [D-TN-6] 10/31/2007
Rep. McNulty, Michael R. [D-NY-21] 10/31/2007
Rep. Pastor, Ed [D-AZ-4] 10/31/2007
Rep. Larson, John B. [D-CT-1] 10/31/2007
Rep. Arcuri, Michael A. [D-NY-24] 10/31/2007
Rep. Hinojosa, Ruben [D-TX-15] 10/31/2007
Rep. Cohen, Steve [D-TN-9] 11/14/2007
Rep. Langevin, James R. [D-RI-2] 11/14/2007
Rep. Abercrombie, Neil [D-HI-1] 11/14/2007
Rep. DeGette, Diana [D-CO-1] 11/14/2007
Rep. Higgins, Brian [D-NY-27] 11/14/2007
Rep. Shays, Christopher [R-CT-4] 11/15/2007
Rep. Engel, Eliot L. [D-NY-17] 11/15/2007
Rep. Green, Gene [D-TX-29] 11/15/2007
Rep. Tauscher, Ellen O. [D-CA-10] 11/15/2007
Rep. Allen, Thomas H. [D-ME-1] 11/15/2007
Rep. Grijalva, Raul M. [D-AZ-7] 11/15/2007
Rep. Gonzalez, Charles A. [D-TX-20] 11/15/2007
Rep. Herseth Sandlin, Stephanie [D-SD-At Large] 11/15/2007
Rep. Sires, Albio [D-NJ-13] 11/15/2007
Rep. Boucher, Rick [D-VA-9] 11/15/2007
Rep. Capps, Lois [D-CA-23] 11/15/2007
Rep. Baca, Joe [D-CA-43] 11/15/2007
Rep. Napolitano, Grace F. [D-CA-38] 11/15/2007
Rep. Ortiz, Solomon P. [D-TX-27] 11/15/2007
Rep. Salazar, John T. [D-CO-3] 11/15/2007
Rep. Lampson, Nick [D-TX-22] 11/15/2007
Rep. Solis, Hilda L. [D-CA-32] 11/15/2007
Rep. Velazquez, Nydia M. [D-NY-12] 11/15/2007
Rep. Rodriguez, Ciro D. [D-TX-23] 11/15/2007
Rep. Cardoza, Dennis A. [D-CA-18] 11/15/2007
Rep. Becerra, Xavier [D-CA-31] 11/15/2007
Rep. Stark, Fortney Pete [D-CA-13] 11/15/2007
Rep. Sanchez, Loretta [D-CA-47] 11/15/2007
Rep. Cuellar, Henry [D-TX-28] 11/15/2007
Rep. Gutierrez, Luis V. [D-IL-4] 11/15/2007
Rep. Serrano, Jose E. [D-NY-16] 11/15/2007
Rep. Sanchez, Linda T. [D-CA-39] 11/15/2007
Rep. DeLauro, Rosa L. [D-CT-3] 11/15/2007
Rep. Lowey, Nita M. [D-NY-18] 11/15/2007
Rep. Lee, Barbara [D-CA-9] 11/15/2007
Rep. Jackson, Jesse L., Jr. [D-IL-2] 11/15/2007
Rep. Kennedy, Patrick J. [D-RI-1] 11/15/2007
Rep. Honda, Michael M. [D-CA-15] 11/15/2007
Rep. Ryan, Tim [D-OH-17] 11/15/2007
Rep. Wasserman Schultz, Debbie [D-FL-20] 11/15/2007
Rep. Berkley, Shelley [D-NV-1] 11/15/2007
Rep. Richardson, Laura [D-CA-37] 11/15/2007
Rep. Hastings, Alcee L. [D-FL-23] 12/19/2007
Rep. Hinchey, Maurice D. [D-NY-22] 12/19/2007
Rep. Berry, Marion [D-AR-1] 12/19/2007
Rep. Duncan, John J., Jr. [R-TN-2] 12/19/2007
Rep. Burgess, Michael C. [R-TX-26] 01/29/2008
Rep. Fossella, Vito [R-NY-13] 01/29/2008
Rep. Pryce, Deborah [R-OH-15] 01/29/2008
Rep. Capito, Shelley Moore [R-WV-2] 01/29/2008
Rep. McHugh, John M. [R-NY-23] 01/29/2008
Rep. Johnson, Henry C. "Hank," Jr. [D-GA-4] 03/04/2008
Rep. Filner, Bob [D-CA-51] 03/04/2008
Rep. Davis, Danny K. [D-IL-7] 03/04/2008
Rep. Granger, Kay [R-TX-12] 03/04/2008
Rep. Murphy, Tim [R-PA-18] 03/13/2008
Rep. Hirono, Mazie K. [D-HI-2] 03/13/2008
Rep. Moore, Dennis [D-KS-3] 04/04/2008
Rep. Lewis, John [D-GA-5] 04/04/2008

Committees (1)

Committees, subcommittees and links to reports associated with this bill are listed here, as well as the nature and date of committee activity and Congressional report number.

Committee / Subcommittee Date Activity Reports
House Energy and Commerce10/15/2007 Referred to
03/13/2008 Markup by
04/08/2008 Reported by H. Rept. 110-570
House Energy and Commerce Subcommittee on Health10/16/2007 Referred to
03/11/2008 Markup by
03/11/2008 Reported by

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Latest Summary (2)

There are 2 summaries for H.R.3825. View summaries

Shown Here:
Reported to House with amendment(s) (04/08/2008)

Newborn Screening Saves Lives Act of 2008 - (Sec. 2) Amends the Public Health Service Act to authorize the Secretary of Health and Human Services, acting through the Administrator of the Health Resources and Services Administration (HRSA), to award grants to eligible entities to: (1) provide screening, counseling, or health care services to newborns and children having or at risk for heritable disorders; (2) provide education and training in newborn screening and congenital, genetic, and metabolic disorders to health care professionals and newborn screening laboratory personnel; (3) develop and deliver educational programs about newborn screening, counseling, testing, follow-up, treatment, and specialty services to parents, families, and patient advocacy and support groups; and (4) establish, maintain, and operate a system to assess and coordinate treatment relating to congenital, genetic, and metabolic disorders.

(Sec. 3) Authorizes appropriations for FY2009-FY2013 for grants for demonstration programs to evaluate the effectiveness of screening, counseling, or health care services in reducing the morbidity and mortality caused by heritable disorders in newborns and children.

(Sec. 4) Expands the duties of the Advisory Committee on Heritable Disorders in Newborns and Children to include: (1) making recommendations that include the heritable disorders for which all newborns should be screened; (2) developing a model decision-matrix for newborn screening expansion; and (3) considering ways to ensure that all states attain the capacity to screen for the recommended conditions. Sets forth deadlines for the Secretary to make a decision on Advisory Committee recommendations.

Requires the Advisory Committee to continue to operate during the five-year period beginning on the date of enactment of this Act.

(Sec. 5) Requires the Secretary, acting through the Administrator, to establish and maintain a central clearinghouse of current information on newborn screening. Sets forth requirements for such clearinghouse, including: (1) ensuring that the clearinghouse is available on the Internet and is updated at least quarterly; (2) providing links to websites that have expertise in newborn screening; (3) providing information about newborn conditions and screening services available in each state; (4) providing current research on conditions for which newborn screening tests are available; and (5) providing the availability of federal funding for newborn and child screening for heritable disorders.

(Sec. 6) Requires the Secretary, acting through the Director of the Centers for Disease Control and Prevention (CDC), to provide for: (1) quality assurance for screening laboratories; and (2) appropriate quality control and other performance test materials to evaluate the performance of new screening tools.

Requires the Secretary to establish an Interagency Coordinating Committee on Newborn and Child Screening to make recommendations on: (1) programs to collect, analyze, and make available data on certain heritable disorders; and (2) the establishment of regional centers to conduct applied epidemiological research on effective interventions for preventing poor health outcomes resulting from such disorders and to provide information and education to the public on such effective interventions.

(Sec. 7) Requires the Secretary, acting through the Director of CDC, to develop a national contingency plan for newborn screening in the event of a public health emergency.

Authorizes the Secretary to continue to carry out, coordinate, and expand research in newborn screening (to be known as the Hunter Kelly Newborn Screening Research Program), including: (1) identifying, developing, and testing the most promising new screening technologies; and (2) experimental treatments and disease management strategies for conditions that can be detected through newborn screening for which treatment is not yet available.