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Titles Actions Overview All Actions Cosponsors Committees Related Bills Subjects Latest Summary All Summaries

Titles (4)

Short Titles

Short Titles as Enacted

ALS Registry Act

Short Titles - Senate

Short Titles as Reported to Senate

ALS Registry Act

Short Titles as Introduced

ALS Registry Act

Official Titles

Official Titles - Senate

Official Titles as Introduced

A bill to amend the Public Health Service Act to provide for the establishment of an Amyotrophic Lateral Sclerosis Registry.

Actions Overview (7)

10/08/2008Became Public Law No: 110-373. (TXT | PDF)
10/08/2008Signed by President.
09/29/2008Presented to President.
09/26/2008Passed/agreed to in House: On motion to suspend the rules and pass the bill Agreed to by recorded vote (2/3 required): 415 - 2 (Roll no. 650).(text: CR 9/25/2008 H9916)
09/23/2008Passed/agreed to in Senate: Passed Senate with an amendment by Unanimous Consent.(text: CR S9230-9231)
12/04/2007Committee on Health, Education, Labor, and Pensions. Reported by Senator Kennedy with an amendment in the nature of a substitute. Without written report.
05/14/2007Introduced in Senate

All Actions (22)

Date Chamber
10/08/2008Became Public Law No: 110-373. (TXT | PDF)
10/08/2008Signed by President.
09/29/2008SenatePresented to President.
09/26/2008-12:02pmHouseMotion to reconsider laid on the table Agreed to without objection.
09/26/2008-12:02pmHouseOn motion to suspend the rules and pass the bill Agreed to by recorded vote (2/3 required): 415 - 2 (Roll no. 650). (text: CR 9/25/2008 H9916)
09/26/2008-11:55amHouseConsidered as unfinished business. (consideration: CR H10042-10043)
09/25/2008-4:38pmHouseAt the conclusion of debate, the chair put the question on the motion to suspend the rules. Mr. Terry objected to the vote on the grounds that a quorum was not present. Further proceedings on the motion were postponed. The point of no quorum was withdrawn.
09/25/2008-4:30pmHouseDEBATE - The House proceeded with forty minutes of debate on S. 1382.
09/25/2008-4:29pmHouseConsidered under suspension of the rules. (consideration: CR H9916-9917)
09/25/2008-4:29pmHouseMr. Pallone moved to suspend the rules and pass the bill.
09/24/2008-11:06amHouseHeld at the desk.
09/24/2008SenateMessage on Senate action sent to the House.
09/24/2008-10:03amHouseReceived in the House.
09/23/2008SenatePassed Senate with an amendment by Unanimous Consent. (text: CR S9230-9231)
09/23/2008SenateS.Amdt.5637 Amendment SA 5637 agreed to in Senate by Unanimous Consent.
09/23/2008SenateS.Amdt.5637 Amendment SA 5637 proposed by Senator Reid. (consideration: CR S9230-9231) In the nature of a substitute.
09/23/2008SenateMeasure laid before Senate by unanimous consent. (consideration: CR S9230-9232)
12/04/2007SenatePlaced on Senate Legislative Calendar under General Orders. Calendar No. 518.
12/04/2007SenateCommittee on Health, Education, Labor, and Pensions. Reported by Senator Kennedy with an amendment in the nature of a substitute. Without written report.
Action By: Committee on Health, Education, Labor, and Pensions
11/14/2007SenateCommittee on Health, Education, Labor, and Pensions. Ordered to be reported with an amendment in the nature of a substitute favorably.
Action By: Committee on Health, Education, Labor, and Pensions
05/14/2007SenateRead twice and referred to the Committee on Health, Education, Labor, and Pensions. (text of measure as introduced: CR S6062-6063)
05/14/2007SenateSponsor introductory remarks on measure. (CR S6062)

Cosponsors (77)

* = Original cosponsor
CosponsorDate Cosponsored
Sen. Murray, Patty [D-WA] 05/15/2007
Sen. Boxer, Barbara [D-CA] 05/15/2007
Sen. Harkin, Tom [D-IA] 05/17/2007
Sen. Brown, Sherrod [D-OH] 05/17/2007
Sen. Isakson, Johnny [R-GA] 05/17/2007
Sen. Inouye, Daniel K. [D-HI] 05/21/2007
Sen. Durbin, Richard J. [D-IL] 05/21/2007
Sen. Sanders, Bernard [I-VT] 05/21/2007
Sen. Craig, Larry E. [R-ID] 05/21/2007
Sen. Baucus, Max [D-MT] 05/21/2007
Sen. Reed, Jack [D-RI] 05/22/2007
Sen. Feinstein, Dianne [D-CA] 05/24/2007
Sen. Coleman, Norm [R-MN] 05/24/2007
Sen. Cochran, Thad [R-MS] 05/24/2007
Sen. Conrad, Kent [D-ND] 05/25/2007
Sen. Clinton, Hillary Rodham [D-NY] 06/04/2007
Sen. Menendez, Robert [D-NJ] 06/04/2007
Sen. Thune, John [R-SD] 06/05/2007
Sen. Bunning, Jim [R-KY] 06/05/2007
Sen. Murkowski, Lisa [R-AK] 06/06/2007
Sen. Dole, Elizabeth [R-NC] 06/06/2007
Sen. Johnson, Tim [D-SD] 06/11/2007
Sen. Klobuchar, Amy [D-MN] 06/11/2007
Sen. Burr, Richard [R-NC] 06/12/2007
Sen. Dodd, Christopher J. [D-CT] 06/13/2007
Sen. Nelson, Bill [D-FL] 06/13/2007
Sen. Bayh, Evan [D-IN] 06/18/2007
Sen. Hagel, Chuck [R-NE] 06/18/2007
Sen. Lautenberg, Frank R. [D-NJ] 06/19/2007
Sen. Vitter, David [R-LA] 06/19/2007
Sen. Warner, John [R-VA] 06/19/2007
Sen. Schumer, Charles E. [D-NY] 06/19/2007
Sen. Bingaman, Jeff [D-NM] 06/20/2007
Sen. Lott, Trent [R-MS] 06/28/2007
Sen. DeMint, Jim [R-SC] 06/28/2007
Sen. Bennett, Robert F. [R-UT] 07/09/2007
Sen. Snowe, Olympia J. [R-ME] 07/11/2007
Sen. Dorgan, Byron L. [D-ND] 07/11/2007
Sen. Stabenow, Debbie [D-MI] 07/23/2007
Sen. Martinez, Mel [R-FL] 07/23/2007
Sen. Casey, Robert P., Jr. [D-PA] 08/02/2007
Sen. Graham, Lindsey [R-SC] 09/10/2007
Sen. Tester, Jon [D-MT] 09/11/2007
Sen. Smith, Gordon H. [R-OR] 09/12/2007
Sen. Lieberman, Joseph I. [ID-CT] 09/19/2007
Sen. Whitehouse, Sheldon [D-RI] 09/21/2007
Sen. Cardin, Benjamin L. [D-MD] 09/21/2007
Sen. Akaka, Daniel K. [D-HI] 09/21/2007
Sen. Grassley, Chuck [R-IA] 09/25/2007
Sen. Cantwell, Maria [D-WA] 09/25/2007
Sen. Collins, Susan M. [R-ME] 09/28/2007
Sen. Landrieu, Mary L. [D-LA] 09/28/2007
Sen. Wyden, Ron [D-OR] 10/01/2007
Sen. Mikulski, Barbara A. [D-MD] 10/01/2007
Sen. Brownback, Sam [R-KS] 10/02/2007
Sen. Sessions, Jeff [R-AL] 10/03/2007
Sen. Biden, Joseph R., Jr. [D-DE] 10/15/2007
Sen. Kerry, John F. [D-MA] 10/17/2007
Sen. Leahy, Patrick J. [D-VT] 10/18/2007
Sen. Chambliss, Saxby [R-GA] 10/18/2007
Sen. McCaskill, Claire [D-MO] 10/19/2007
Sen. Levin, Carl [D-MI] 10/25/2007
Sen. Carper, Thomas R. [D-DE] 10/26/2007
Sen. Pryor, Mark L. [D-AR] 11/14/2007
Sen. Sununu, John E. [R-NH] 11/14/2007
Sen. Lincoln, Blanche L. [D-AR] 11/14/2007
Sen. Stevens, Ted [R-AK] 12/06/2007
Sen. Webb, Jim [D-VA] 12/14/2007
Sen. Crapo, Mike [R-ID] 02/07/2008
Sen. McCain, John [R-AZ] 02/14/2008
Sen. Wicker, Roger F. [R-MS] 02/27/2008
Sen. Hatch, Orrin G. [R-UT] 04/01/2008
Sen. Barrasso, John [R-WY] 05/12/2008
Sen. Nelson, Ben [D-NE] 05/14/2008
Sen. Voinovich, George V. [R-OH] 05/19/2008
Sen. Domenici, Pete V. [R-NM] 05/22/2008
Sen. Lugar, Richard G. [R-IN] 07/15/2008

Committees (1)

Committees, subcommittees and links to reports associated with this bill are listed here, as well as the nature and date of committee activity and Congressional report number.

Committee / Subcommittee Date Activity Reports
Senate Health, Education, Labor, and Pensions05/14/2007 Referred to
11/14/2007 Markup by
12/04/2007 Reported by

A related bill may be a companion measure, an identical bill, a procedurally-related measure, or one with text similarities. Bill relationships are identified by the House, the Senate, or CRS, and refer only to same-congress measures.

Latest Summary (3)

There are 3 summaries for S.1382. View summaries

Shown Here:
Public Law No: 110-373 (10/08/2008)

ALS Registry Act - (Sec. 2) Amends the Public Health Service Act to authorize the Secretary of Health and Human Services, acting through the Director of the Centers for Disease Control and Prevention (CDC), if scientifically advisable, to: (1) develop a system to collect data on amyotrophic lateral sclerosis (ALS) and other motor neuron disorders that can be confused with ALS, misdiagnosed as ALS, or progress to ALS; and (2) establish a national registry for the collection and storage of such data to develop a population-based registry of cases.

Authorizes the Secretary, acting through the Director, to establish the Advisory Committee on the National ALS Registry, which may review information and make recommendations to the Secretary concerning: (1) the development and maintenance of the registry; (2) the type of information to be included; (3) the manner in which data is to be collected; (4) the use and availability of such data; and (5) the collection of information about diseases and disorders that primarily affect motor neurons that are considered essential to furthering the study and cure of ALS.

Allows the Secretary, acting through the Director, to award grants to, and enter into contracts and cooperative agreements with, public or private nonprofit entities for the collection, analysis, and reporting of data on ALS and other motor neuron disorders.

Authorizes the Secretary, acting through the Director, to: (1) identify, build upon, expand, and coordinate among existing data and surveillance systems, surveys, registries, and other federal public health and environmental infrastructure wherever possible; and (2) provide for research access to ALS data as recommended by the Advisory Committee in a manner that protects personal privacy.

Allows the Secretary to ensure that epidemiological and other types of information is made available to the National Institutes of Health (NIH) and the Department of Veterans Affairs (VA).

(Sec. 3) Authorizes the Secretary to report to the appropriate congressional committees on ALS registries, including: (1) the registries currently under way and future planned registries; (2) the criteria involved in determining what registries to conduct, defer, or suspend; (3) the scope of those registries; and (4) the activities the Secretary undertakes to establish partnerships with research and patient advocacy communities to expand registries.