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Titles Actions Overview All Actions Cosponsors Committees Related Bills Subjects Latest Summary All Summaries

Titles (6)

Short Titles

Short Titles as Enacted

Newborn Screening Saves Lives Reauthorization Act of 2014

Short Titles - House of Representatives

Short Titles as Passed House

Newborn Screening Saves Lives Reauthorization Act of 2014

Short Titles as Reported to House

Newborn Screening Saves Lives Reauthorization Act of 2014

Short Titles as Introduced

Newborn Screening Saves Lives Reauthorization Act of 2013

Short Titles - Senate

Short Titles as Passed Senate

Newborn Screening Saves Lives Reauthorization Act of 2014

Official Titles

Official Titles - House of Representatives

Official Title as Introduced

To amend the Public Health Service Act to reauthorize programs under part A of title XI of such Act.


Actions Overview (8)

Date
12/18/2014Became Public Law No: 113-240. (TXT | PDF)
12/18/2014Signed by President.
12/12/2014Presented to President.
12/10/2014Resolving differences -- House actions: On motion that the House agree to the Senate amendment Agreed to without objection.(text as House agreed to Senate amendment: CR H8994-8998)
12/08/2014Passed/agreed to in Senate: Passed Senate with an amendment by Unanimous Consent.
06/24/2014Passed/agreed to in House: On motion to suspend the rules and pass the bill, as amended Agreed to by voice vote.(text: CR H5696-5697)
06/19/2014Reported (Amended) by the Committee on Energy and Commerce. H. Rept. 113-478.
03/20/2013Introduced in House

All Actions (26)

Date Chamber
12/18/2014Became Public Law No: 113-240. (TXT | PDF)
12/18/2014Signed by President.
12/12/2014HousePresented to President.
12/10/2014-5:22pmHouseMotion to reconsider laid on the table Agreed to without objection.
12/10/2014-5:22pmHouseOn motion that the House agree to the Senate amendment Agreed to without objection. (text as House agreed to Senate amendment: CR H8994-8998)
12/10/2014-5:22pmHouseMrs. Ellmers asked unanimous consent that the House agree to the Senate amendment. (consideration: CR H8994-8998)
12/09/2014SenateMessage on Senate action sent to the House.
12/08/2014SenatePassed Senate with an amendment by Unanimous Consent.
12/08/2014SenateS.Amdt.3976 Amendment agreed to in Senate by Unanimous Consent.
12/08/2014SenateS.Amdt.3976 Amendment SA 3976 proposed by Senator Reid for Senator Paul. (consideration: CR S6395; text: CR S6395) To clarify the rules relating to newborn screening research and informed consent.
12/08/2014SenateMeasure laid before Senate by unanimous consent. (consideration: CR S6395)
06/25/2014SenateReceived in the Senate, read twice.
06/24/2014-7:11pmHouseOn motion to suspend the rules and pass the bill, as amended Agreed to by voice vote. (text: CR H5696-5697)
06/24/2014-6:56pmHouseDEBATE - The House proceeded with forty minutes of debate on H.R. 1281.
06/24/2014-6:56pmHouseConsidered under suspension of the rules. (consideration: CR H5696-5699)
06/24/2014-6:56pmHouseMr. Pitts moved to suspend the rules and pass the bill, as amended.
06/19/2014HousePlaced on the Union Calendar, Calendar No. 354.
06/19/2014HouseReported (Amended) by the Committee on Energy and Commerce. H. Rept. 113-478.
Action By: Committee on Energy and Commerce
04/03/2014HouseOrdered to be Reported (Amended) by Unanimous Consent.
Action By: Committee on Energy and Commerce
04/03/2014HouseCommittee Consideration and Mark-up Session Held.
Action By: Committee on Energy and Commerce
02/27/2014HouseForwarded by Subcommittee to Full Committee (Amended) by Voice Vote .
Action By: House Energy and Commerce Subcommittee on Health
02/27/2014HouseSubcommittee Consideration and Mark-up Session Held.
Action By: House Energy and Commerce Subcommittee on Health
03/22/2013HouseReferred to the Subcommittee on Health.
Action By: Committee on Energy and Commerce
03/20/2013HouseReferred to the House Committee on Energy and Commerce.
03/20/2013HouseSponsor introductory remarks on measure. (CR H1643)
03/20/2013HouseIntroduced in House

Cosponsors (120)

* = Original cosponsor
CosponsorDate Cosponsored
Rep. Simpson, Michael K. [R-ID-2]* 03/20/2013
Rep. Moore, Gwen [D-WI-4] 03/21/2013
Rep. Grijalva, Raul M. [D-AZ-3] 03/21/2013
Rep. Waxman, Henry A. [D-CA-33] 03/25/2013
Rep. Rogers, Harold [R-KY-5] 04/15/2013
Rep. Higgins, Brian [D-NY-26] 04/26/2013
Rep. Rangel, Charles B. [D-NY-13] 05/06/2013
Rep. Lee, Barbara [D-CA-13] 05/06/2013
Rep. Speier, Jackie [D-CA-14] 05/06/2013
Rep. McGovern, James P. [D-MA-2] 05/06/2013
Rep. Capps, Lois [D-CA-24] 05/06/2013
Rep. Jackson Lee, Sheila [D-TX-18] 05/06/2013
Rep. Hastings, Alcee L. [D-FL-20] 05/06/2013
Rep. McCollum, Betty [D-MN-4] 05/06/2013
Rep. Scott, David [D-GA-13] 05/06/2013
Rep. Clarke, Yvette D. [D-NY-9] 05/06/2013
Rep. Conyers, John, Jr. [D-MI-13] 05/06/2013
Rep. Dingell, John D. [D-MI-12] 05/06/2013
Rep. Huffman, Jared [D-CA-2] 05/06/2013
Rep. DeLauro, Rosa L. [D-CT-3] 05/06/2013
Rep. Crowley, Joseph [D-NY-14] 05/06/2013
Rep. Cohen, Steve [D-TN-9] 05/06/2013
Rep. Slaughter, Louise McIntosh [D-NY-25] 05/06/2013
Rep. Bishop, Sanford D., Jr. [D-GA-2] 05/06/2013
Rep. Castor, Kathy [D-FL-14] 05/06/2013
Rep. Takano, Mark [D-CA-41] 05/06/2013
Rep. Wilson, Frederica S. [D-FL-24] 05/06/2013
Rep. Loebsack, David [D-IA-2] 05/06/2013
Rep. Bera, Ami [D-CA-7] 05/14/2013
Rep. Walden, Greg [R-OR-2] 05/14/2013
Rep. Nadler, Jerrold [D-NY-10] 06/03/2013
Rep. Green, Gene [D-TX-29] 06/03/2013
Rep. Delaney, John K. [D-MD-6] 06/11/2013
Rep. Collins, Chris [R-NY-27] 06/11/2013
Rep. Pocan, Mark [D-WI-2] 06/11/2013
Rep. Heck, Denny [D-WA-10] 06/11/2013
Rep. Farr, Sam [D-CA-20] 06/11/2013
Rep. Matheson, Jim [D-UT-4] 07/08/2013
Rep. Beatty, Joyce [D-OH-3] 07/24/2013
Rep. Kirkpatrick, Ann [D-AZ-1] 07/30/2013
Rep. Moran, James P. [D-VA-8] 09/09/2013
Rep. Sires, Albio [D-NJ-8] 09/19/2013
Rep. Schakowsky, Janice D. [D-IL-9] 09/19/2013
Rep. Costa, Jim [D-CA-16] 09/19/2013
Rep. Sanchez, Loretta [D-CA-46] 09/19/2013
Rep. Ruiz, Raul [D-CA-36] 09/19/2013
Rep. Negrete McLeod, Gloria [D-CA-35] 09/19/2013
Rep. Castro, Joaquin [D-TX-20] 09/19/2013
Rep. Gallego, Pete P. [D-TX-23] 09/19/2013
Rep. Becerra, Xavier [D-CA-34] 09/19/2013
Rep. Sablan, Gregorio Kilili Camacho [D-MP-At Large] 09/19/2013
Rep. Lujan Grisham, Michelle [D-NM-1] 09/19/2013
Rep. Cardenas, Tony [D-CA-29] 09/19/2013
Rep. Gutierrez, Luis V. [D-IL-4] 09/19/2013
Rep. Ryan, Tim [D-OH-13] 09/19/2013
Rep. Lujan, Ben Ray [D-NM-3] 09/19/2013
Rep. Garcia, Joe [D-FL-26] 09/19/2013
Rep. Hinojosa, Ruben [D-TX-15] 09/19/2013
Rep. Napolitano, Grace F. [D-CA-32] 09/19/2013
Rep. Vargas, Juan [D-CA-51] 09/19/2013
Rep. Serrano, Jose E. [D-NY-15] 09/19/2013
Rep. Velazquez, Nydia M. [D-NY-7] 09/19/2013
Rep. King, Peter T. [R-NY-2] 09/19/2013
Rep. Capito, Shelley Moore [R-WV-2] 09/23/2013
Rep. Calvert, Ken [R-CA-42] 09/23/2013
Rep. Royce, Edward R. [R-CA-39] 09/23/2013
Rep. Grayson, Alan [D-FL-9] 09/25/2013
Rep. Esty, Elizabeth H. [D-CT-5] 09/25/2013
Rep. Miller, Gary G. [R-CA-31] 09/25/2013
Rep. Jones, Walter B., Jr. [R-NC-3] 09/28/2013
Rep. McKeon, Howard P. "Buck" [R-CA-25] 09/28/2013
Rep. Pierluisi, Pedro R. [D-PR-At Large] 09/28/2013
Rep. Schiff, Adam B. [D-CA-28] 09/28/2013
Rep. Neal, Richard E. [D-MA-1] 09/28/2013
Rep. Langevin, James R. [D-RI-2] 09/28/2013
Rep. Doyle, Michael F. [D-PA-14] 09/28/2013
Rep. Tonko, Paul [D-NY-20] 09/28/2013
Rep. Wasserman Schultz, Debbie [D-FL-23] 09/28/2013
Rep. DeGette, Diana [D-CO-1] 09/28/2013
Rep. Eshoo, Anna G. [D-CA-18] 09/28/2013
Rep. Lowey, Nita M. [D-NY-17] 09/28/2013
Rep. Barton, Joe [R-TX-6] 09/28/2013
Rep. Davis, Danny K. [D-IL-7] 09/28/2013
Rep. Garamendi, John [D-CA-3] 09/28/2013
Rep. McDermott, Jim [D-WA-7] 10/11/2013
Rep. Nunes, Devin [R-CA-22] 10/11/2013
Rep. Courtney, Joe [D-CT-2] 10/11/2013
Rep. Levin, Sander M. [D-MI-9] 10/11/2013
Rep. Cicilline, David N. [D-RI-1] 10/11/2013
Rep. Welch, Peter [D-VT-At Large] 10/23/2013
Rep. Blumenauer, Earl [D-OR-3] 10/23/2013
Rep. Titus, Dina [D-NV-1] 10/23/2013
Rep. Lipinski, Daniel [D-IL-3] 10/24/2013
Rep. Tierney, John F. [D-MA-6] 10/30/2013
Rep. Larson, John B. [D-CT-1] 10/30/2013
Rep. Matsui, Doris O. [D-CA-6] 10/30/2013
Rep. Granger, Kay [R-TX-12] 10/30/2013
Rep. Latham, Tom [R-IA-3] 11/12/2013
Rep. Christensen, Donna M. [D-VI-At Large] 11/21/2013
Rep. Lance, Leonard [R-NJ-7] 12/11/2013
Rep. Ellison, Keith [D-MN-5] 12/11/2013
Rep. Honda, Michael M. [D-CA-17] 12/11/2013
Rep. Shea-Porter, Carol [D-NH-1] 01/07/2014
Rep. Brownley, Julia [D-CA-26] 01/10/2014
Rep. Edwards, Donna F. [D-MD-4] 01/10/2014
Rep. Meeks, Gregory W. [D-NY-5] 01/10/2014
Rep. Michaud, Michael H. [D-ME-2] 01/10/2014
Rep. Johnson, Eddie Bernice [D-TX-30] 01/15/2014
Rep. Payne, Donald M., Jr. [D-NJ-10] 01/15/2014
Rep. Pallone, Frank, Jr. [D-NJ-6] 01/15/2014
Rep. Johnson, Henry C. "Hank," Jr. [D-GA-4] 01/28/2014
Rep. Lowenthal, Alan S. [D-CA-47] 01/28/2014
Rep. Thompson, Mike [D-CA-5] 02/03/2014
Rep. Clay, Wm. Lacy [D-MO-1] 02/03/2014
Rep. Cartwright, Matt [D-PA-17] 02/06/2014
Rep. Schwartz, Allyson Y. [D-PA-13] 02/11/2014
Rep. Pascrell, Bill, Jr. [D-NJ-9] 03/25/2014
Rep. Burgess, Michael C. [R-TX-26] 04/03/2014
Rep. McMorris Rodgers, Cathy [R-WA-5] 04/03/2014
Rep. Israel, Steve [D-NY-3] 04/07/2014

Committees (1)

Committees, subcommittees and links to reports associated with this bill are listed here, as well as the nature and date of committee activity and Congressional report number.

Committee / Subcommittee Date Activity Reports
House Energy and Commerce03/20/2013 Referred to
04/03/2014 Markup by
06/19/2014 Reported by H. Rept. 113-478
House Energy and Commerce Subcommittee on Health03/22/2013 Referred to
02/27/2014 Markup by
02/27/2014 Reported by

No related bill information was received for H.R.1281.


Latest Summary (5)

There are 5 summaries for H.R.1281. View summaries

Shown Here:
Public Law No: 113-240 (12/18/2014)

(This measure has not been amended since it was passed by the Senate on December 8, 2014. The summary of that version is repeated here.)

Newborn Screening Saves Lives Reauthorization Act of 2014 - (Sec. 2) Amends the Public Health Service Act to revise and extend through FY2019 a grant program for screening, counseling, and other services related to heritable disorders that can be detected in newborns. Allows grants to be used to improve timeliness of newborn screening and provide training to health care professionals on the importance of timely screening and on the sharing of medical and diagnostic information with providers and families.

(Sec. 3) Extends through FY2019 a grant program to evaluate the effectiveness of screening, counseling, or health care services in reducing the morbidity and mortality caused by heritable disorders in newborns and children. Expands the program to include evaluation of health outcomes through adolescence and best practices for timely screening of newborns.

(Sec. 4) Extends for five years the operation of the Advisory Committee on Heritable Disorders in Newborns and Children. Authorizes the Secretary of Health and Human Services (HHS) to continue the Advisory Committee after such time.

(Sec. 5) Extends through FY2019 the clearinghouse for newborn screening information. Expands the duties of the clearinghouse to include: (1) maintaining current information on the number of conditions for which screening is conducted in each state; and (2) disseminating guidelines for diagnosis, counseling, and treatment of conditions detected by newborn screening.

(Sec. 6) Extends through FY2019 requirements for the Director of the Centers for Disease Control and Prevention (CDC) to provide for quality assurance of laboratories involved in screening newborns and children for heritable disorders. Authorizes the Director to coordinate surveillance activities, including through standardized data collection and reporting and electronic health records.

(Sec. 7) Makes permanent the Interagency Coordinating Committee on Newborn and Child Screening. Adds the Administrator of the Health Resources and Services Administration and the Commissioner of Food and Drugs (FDA) to this committee.

(Sec. 8) Requires the Director to update the national contingency plan for newborn screening at least every five years.

(Sec. 9) Authorizes the Secretary to expand the Hunter Kelly Newborn Screening Research Program to: (1) provide research and data for newborn conditions under review by the Advisory Committee to be added to the Recommended Uniform Screening Panel, and (2) conduct pilot studies on conditions recommended by the Advisory Committee to ensure that screenings are ready for nationwide implementation.

(Sec. 11) Requires the Comptroller General (GAO) to report on the timeliness of newborn screening. Requires the Secretary to report on newborn screening activities and expenditures.

(Sec. 12) Directs HHS to update the Federal Policy for the Protection of Human Subjects, also known as the Common Rule, not later than two years after enactment of this Act. Applies the following provisions until HHS updates the Common Rule:

  • requires federally funded research on newborn dried blood spots to be considered research on human subjects (which requires the informed consent of the subject), and
  • eliminates the ability of an institutional review board to waive informed consent requirements for research on newborn dried blood spots.