Summary: H.R.5115 — 115th Congress (2017-2018)All Information (Except Text)

There is one summary for H.R.5115. Bill summaries are authored by CRS.

Shown Here:
Introduced in House (02/27/2018)

Rare disease Advancement, Research, and Education Act of 2018 or the RARE Act of 2018

This bill reauthorizes through FY2023 the Office of Rare Diseases in the National Institutes of Health.

The bill requires (1) the Centers for Disease Control and Prevention to expand infrastructure and activities to track the epidemiology of rare diseases and conditions and to incorporate this information into a National Rare Disease or Condition Surveillance System, and (2) the Agency for Healthcare Research and Quality to expand its activities to increase providers' awareness of rare diseases and conditions.