H.R.534 - Aidan's Law116th Congress (2019-2020) |
|Sponsor:||Rep. Clarke, Yvette D. [D-NY-9] (Introduced 01/14/2019)|
|Committees:||House - Energy and Commerce|
|Latest Action:||House - 01/25/2019 Referred to the Subcommittee on Health. (All Actions)|
This bill has the status Introduced
Here are the steps for Status of Legislation:
- Passed House
- Passed Senate
- To President
- Became Law
Summary: H.R.534 — 116th Congress (2019-2020)All Information (Except Text)
Introduced in House (01/14/2019)
This bill authorizes newborn screenings for adrenoleukodystrophy (also known as ALD), which is a hereditary condition that damages the insulating membrane of nerve cells in the brain. The bill authorizes hospitals, child care centers, clinics, and similar institutions to test newborns for ALD in accordance with state protocols; such protocols must be approved by the Discretionary Advisory Committee on Heritable Disorders in Newborns and Children.
The bill also reauthorizes for FY2020-FY2023 the heritable disorders screening program for newborns and children that is administered by the Health Resources and Services Administration.