Summary: H.R.5553 — 99th Congress (1985-1986)All Information (Except Text)

There is one summary for H.R.5553. Bill summaries are authored by CRS.

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Introduced in House (09/18/1986)

Alzheimer's Disease and Related Dementias Services Research Act of 1986 - Title I: Council on Alzheimer's Disease - Establishes the Task Force on Alzheimer's Disease as a Council of the Department of Health and Human Services through FY 1991. Sets forth the duties of such Council which include assisting the National Institute on Aging, the National Institute of Mental Health, and the National Center for Health Services Research and Health Care Technology Assessment in developing a coordinated agenda for the activities authorized by this Act and in making necessary adjustments in planned research programs. Directs the Council to report to the Congress and the public within nine months of enactment of this Act on the proposed agenda, and annually thereafter regarding the Alzheimer's disease research authorized by this Act.

Title II: National Institute on Aging - Requires the National Institute on Aging to initiate a services-relevant research program on Alzheimer's disease and related dementias which stresses research in: (1) epidemiology and the identification of risk factors in Alzheimer's disease and related dementias; and (2) the development and evaluation of reliable and valid multidimensional diagnostic and assessment procedures and instruments. Directs the National Institute on Aging to: (1) cooperate with the Council in coordinating its program with the others authorized by this Act; and (2) disseminate its findings. Authorizes appropriations for FY 1987 through 1991.

Title III: National Institute of Mental Health - Requires the National Institute of Mental Health to initiate a services-relevant research program on Alzheimer's disease and related dementias which stresses research in: (1) mental health services relevant to the problems associated with such dementias; (2) discovery of the optimal range and cost effectiveness of community and institutional services relevant to such dementias; (3) assessment of the efficacy of the various special care units developing around the country for Alzheimer's disease victims; (4) discovery of the ways formal support services provided by health care professionals can be combined with informal support services provided by family and friends as well as ways to provide relief to family caregivers; and (5) discovery of the best methods of delivering the varied services available to dementia victims. Directs the National Institute of Mental Health to: (1) cooperate with the Council in coordinating its program with the others authorized by this Act; and (2) disseminate its findings. Authorizes appropriations for FY 1987 through 1991.

Title IV: National Center for Health Services Research - Requires the National Center for Health Services Research and Health Care Technology Assessment to initiate a services-relevant research program on Alzheimer's disease and related dementias which: (1) inventories and analyzes existing data sets and studies relevant to such dementias; and (2) develops estimates of costs borne by dementia patients and their families, stressing what distinguishes the needs of dementia victims from the needs of other patients with long-term care needs. Directs the National Center for Health Services Research and Health Care Technology Assessment to: (1) cooperate with at the Council in coordinating its program with the others authorized by this Act; and (2) disseminate its findings. Authorizes appropriations for FY 1987 through 1991.

Title V: Dissemination - Directs the National Institute on Aging to establish a clearinghouse to organize and disseminate services-relevant information on Alzheimer's disease and related dementias and annually publish a summary of such information. Requires the Institute to establish a project, through a grant or contract with a nonprofit organization, to assist it in disseminating nontechnical information about State and private initiatives providing care to Alzheimer's disease victims and support to families caring for such individuals. Requires such nonprofit organization to demonstrate that it will undertake activities to become financially independent at the close of FY 1991. Directs the Institute to: (1) compile information and translate research and technical information about government and private sector initiatives relating to services for individuals with Alzheimer's disease and related dementias; and (2) establish a national toll-free telephone line for information dissemination, but set an appropriate fee for other information dissemination.

Provides for clearinghouse reports summarizing the findings of the research programs mandated by this Act.

Authorizes appropriations for FY 1987 through 1991.