RAISING AWARENESS ABOUT ALS; Congressional Record Vol. 165, No. 151
(House of Representatives - September 19, 2019)

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                      RAISING AWARENESS ABOUT ALS

  (Mr. DELGADO asked and was given permission to address the House for 
1 minute.)
  Mr. DELGADO. Mr. Speaker, I rise today to shine a light on one of my 
constituents, Mr. Dan Shultes.
  Dan, who lives in Schoharie County, is a wonderful family man with a 
wife, two young children, and a community that loves him dearly. At 42 
years of age, he has, in just a matter of months, gone from being 
completely healthy to being diagnosed with ALS.
  This devastating disease has stolen his ability to complete basic 
tasks such as brushing his teeth, feeding himself, or signing his name. 
When I saw him last month at a barbecue, he was confined to a 
wheelchair, surrounded by loved ones.
  Stories like Dan's should remind us how important it is to continue 
to raise awareness about ALS and motivate Congress to take every action 
possible to help the 30,000 Americans struggling with ALS. Congress 
must provide robust funding for disease research and create expedient 
pathways to market for new treatments and medications that could save 
or drastically improve the quality of life for those living with this 
disease. We should work tirelessly to provide guidance or therapeutic 
solutions as soon as possible.
  Lastly, Mr. Speaker, I want to thank my good friend and colleague, 
Paul Tonko, a true ally in this fight, as we are working closely with 
the Shultes family.
  May God bless Dan Shultes and his family.